Frustrated With Multiple Sclerosis

Frustrated With Multiple Sclerosis

I guess it is time that I write about what is going with me and the Multiple Sclerosis because I haven’t really done an update in a while.  If you were to look at my you wouldn’t be able to tell that anything is wrong with me because everything that is going on is on the inside or at least if I don’t tell you anything is wrong then you won’t know anything is wrong.

For the last 2 or 3 months I have been exhausted to say the least.  I wrote a post earlier this week about how I am not sleeping but this exhaustion is so much more than just not sleeping.  It is so hard for me to explain the difference between being tired because of lack of sleep or being exhausted because of the MS.  I don’t think there really is away for me to explain it other than saying I am so tired that if I could stop breathing I would because that takes more energy than I have.

I know that my lack of sleeping isn’t helping the situation any either so that gets to me as well.  I just feel like I am falling apart and we have no reason as to why I am feeling this way.  I had an MRI done at the end of August and when I went to get the results my scanned showed that the disease hadn’t been active in the last six months.  Which should be a great thing but I felt confused and pissed off by it.  I really wish the scan would have shown something so that there was some sort of reason for why I am feeling the way that I am.

After my last appointment  I started on a new medication and I have taken it for a month and haven’t seen any change in how I am feeling so I don’t know if it is working or not.  She did say that I could take it twice a day and I haven’t done that yet because I already take so many pills that I hate taking more but I think I am going to try to take it twice a day for a couple of weeks and see what happens.

It is so hard having something like MS because it sucks when you can’t figure out what is wrong in order to try to fix it.  I have to wonder if I am going to have an MS relapse soon because this is usually how you feel before you have one or it is at least how I have always felt before one.  As of now I am “stable” but I don’t think I truly am.  There has to be something going on and it just isn’t showing up on the MRI.  My next MRI is in February and I see my doctor again at the beginning of March so we will see what happens in the next few months.

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Changes Over The Last Year

Wow this past year has changed me in so many ways. I can’t even imagine where I would be if my life hadn’t changed that much.  I am going to write about the changes over the last year for me and some of the people in my life. All the changes has been so good for me and also for the people that are in my life.

It was this time last year that they let Misti go at work. I still remember the day they let her go like it was yesterday even though I still wish that is was just a bad dream and that I could wake up for it. I don’t know that it will ever be the same here without her being here. It is even harder to wrap my head around the fact that she has had a baby and is now a mother.

Also anyone who has followed my blog from the start will know that my daughters birthday is coming up and that always makes it a tough time of year for me. I am finding that this year is going to be harder than some of the past years have been. It is always hard to gauge how a year will be for me but I think this is going to be hard for me.

Well that was quite the tangent so lets get back to the post. Other than those things I am still pretty much blogging about the same things. I really haven’t changed what I blog about because I have always just blogged about my life and for the most part my life doesn’t change that much.

How has the past year been for you?

Mama’s Losin’ It-Changes over the last year

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Ways to Cope With Placing Your Child For Adoption

I placed my daughter for adoption in July of 2005.   I attend a support group for unwed mothers that the agency I was going to had.  Not everyone in the group was placing for adoption but I learned so much from the girls that have placed and listening to what worked and didn’t work for them.  I figured that I would share some of the things that worked for me and things that may work for other birth parents.

Before I get into them I was researching some things on adoption and I found this article.  While I reading through article I found this paragraph and I really liked what it said.  I am going to post it here because I think it speaks volumes about how birth parents are looked at by people who don’t understand are choices.  Here is the paragraph:

Most people at some time in their lives experience grief when they are separated from a loved one. However, in adoption, there are no standard grieving processes or approved rituals to help birthparents cope. When a well-liked co-worker accepts a new job in a new city, there is often a going away party. When a loved one dies, there may be a religious service, a wake, a funeral, and visits to the survivors’ home by friends and relatives. But birthparents’ grief is distinct from most other types of grief, because it is not always socially acceptable to talk about what happened.

Now on to the ways I coped and ways that others have coped with the greif.

  • Journal-I wrote out why I placed her in a journal that I then gave to the adoptive mom to give to my daughter when they thought she was ready to read it.
  • Talk to other birth moms-It helped me tons to be able to talk to other girls who had been though it and could tell me that it would get better with time.  I never thought the first year would end but each year it gets easier at least it has for me.
  • Take one day at at time-There are time where You are going to have to take it minute by minute but know that time will heal the pain.  At first the pain is so raw that it is all you can think about but it does get easier I promise.
  • Build a support system-I helps to have people who know the whole story and whither or not they agree with your choice they will still stand behind you and listen to you talk.  There will be times that just talking to someone and having them not try to answer but just listen helps so much.  It makes such a difference to just get the thoughts out of you head and have someone not feel the need to try and make it better but just listen.
  • Allow yourself to feel the emotions-I know in the beginning I wanted to run from the emotions I was feeling and not feel anything but by doing that you are going to be making it harder in the long run.  Allow yourself to feel and grieve.
  • Keep Scrapbooks and/or pictures around-If you were to walk into my room right now the only pictures I have up are the ones of her when she is older.  In the beginning looking at the pictures made me feel better but after the first year and even know it is so hard for me to look at the pictures of her while we were in the hospital because I want the baby.  I heard from one of the girls in the support group that her child became two different people in her head even though she knew they were the same.  She like me wanted the baby and not the child that she is now.
  • If you need help ask-Don’t be too afraid to talk to a counselor if you are having a hard time deal with all of the emotions.  I saw one quite awhile after I placed my daughter and that helped me so much.

When I think of more ways I am for sure going to post them and if you know of any other ways to cope please leave a comment so that I can add it to my next post.

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You Haven’t Seen The Last Of Me

Some of you will know that I love music.  I always have it on at work in the background and I usually have it on at night when I am designing or surfing the web.  I always seem to have songs for everything that I have gone through or are going through.  When I was pregnant the song “Welcome To My Life” by Simple Plan was how I was feeling.  Every time I hear that song now it brings back all of the memories and feelings I had when I found out I was pregnant.

Right now the song that describes how I am feeling is by Cher from the movie “Burlesque”.  It is called “You Haven’t Seen The Last Of Me”.

I love this song right now because I feel defeated.  There is a lot going on right now that I won’t get into but this song says how I feel right now.  Like the song says you haven’t seen the last of me.  I will get through everything that is going on and I will come out on top!

Do you have songs that explain certain parts of your life?

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I Wish Mine Was Happy

Some of you may know that my best friend is pregnant with her first baby.  I am so excited for her and happy that she is finally getting the family she has wanted for so long so please don’t take this post the wrong way.  When I see how happy she is I wish I could have felt that happiness when I was pregnant.  From the moment I found out I was pregnant I knew that she wasn’t meant for me and that I was going to place her for adoption.  I never got to be excited that I was pregnant.  I see women that are so excited and I wish that my pregnancy could have been like that.  I was so sad the whole time because I knew what the end out come as going to be.  It is hard to explain what it is like being pregnant and knowing that after you give birth that you are going to walk away and place your child with another family.  I also wonder if it would be harder to place a child for adoption if you didn’t know from the start that is what you were going to do.  I don’t regret placing her for adoption but I wish things were different while I was pregnant.

I have been thinking about volunteering to help out other birth moms that have placed their children or are going to be placing them.   While I was pregnant I attended a support group that was held at the agency I went through.  I went through a agency that is run by a church and I think there need to be more groups for birth moms to go.  I know that some people wouldn’t be comfortable attending the group I did because of the ties to the church.  I just see such a need for birth moms to have a place to go and take to others who know how they feel.

People see how I am now and get frustrated because they aren’t were I am.  What they don’t understand is my daughter is now 6 years old and I have had people to talk to about it all.  Now that being said people don’t know that I can’t look at her baby pictures because they make me cry.  I have her pictures when she is older framed and on my walls but I can’t bring out her baby pictures because they make me sad.  I am sorry this post is all over but I have been thinking a lot about adoption lately and I hope I can find a way to help other birth moms.

A Week In My Life-Thursday

I am so glad it is Thursday.  Work has been nuts this week to say the least.  I was super busy today but something happened that made it a super hard day.  I am not sure if you guys know Melissa from Sugar Filled Emotions but no one can get a hold of her and we are worried that she may have committed suicide last night.  I really don’t have it in me to write a post about my day.  I am sorry but I don’t feel right writing tonight.  I will be back on and write about my Friday.

If everyone could please say a prayer that she is okay and that someone found her and she is getting help and didn’t kill herself.  I look at her like she is my mom and I am super depressed about everything going on.  So all I can say is please pray she is okay.
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Mom . . .

I have been thinking a lot about my own daughter and it has made me think about my own mom.  I have to wonder how my mom can treat me like she does.  I know I could never do what she is doing to me to Brita.  I can’t wrap my head around a mother not caring about her kids.  I understood about her not looking for me but since I have found her she wants nothing to do with us.  I thought mothers loved their children and would want a relationship with them.  I don’t understand how she can just turn off her love for me and my brother.  How do could she just walk away when I was 8 and never come back?  Its like she has just forgotten about us and is able to pretend we don’t exist. 

When I called her on this stuff she told me I didn’t have to mean!?!?!?  Funny thing about it is that I wasn’t mean to her I was just being honest with her and telling her how I feel.  As I read through my email I guess I can see how she thought I was being rude but in the end all I was doing is saying how I felt and she didn’t understand that. As I read through her response back to me it seemed like a whole bunch of excuses.  She is always blaming it on everyone but herself.  What sucks is the fact that since she sent that last email I haven’t heard from her once. I was going to included the actual emails but now that I am thinking about it I have decided that I am going to take them out only because I am hurt and I might regret putting them in the post one day.  I know this post has rambled and probably talked about the same things over and over again but like I always say “This is my blog take it or leave it!”. 

For all you parents out their how do you forget you have 2 children????

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