Changes From Last Year To This Year

April 25, 2013 By

Changes

This week for the writers workshop I am going to write about what was going on this time last year and what I think of it all now that it is a year later.  I went through the whole month of April and I really only wrote 5 actual posts.  The few other posts I had were reviews of some sort. Here is a list of the posts from last year if you would like to go back and check them out.  I also will list any changes in how I am thinking from last year to this year.

  • My MS Medications- all of my medication are basically still the same and since I am stable there is no reason to change them or to even mess with them.
  • Standing Still- I forgot that I wrote this post last year and to be honest I still feel like I am standing still but I also feel like I am all alone and I know that is because of how I have treated people.  There are parts of this post that are still true and other parts that aren’t because I really don’t have any friends anymore.
  • MS Tuesdays Medications That Don’t Work For Me- nothing has changed with this post because nothing has stopped working for me.
  • How To: Break Your New Cell Phone- lets just say I haven’t broken a phone since this post and I better not break my iPhone or I am going to be pissed.
  • My Top 10 YouTube Channels- this has changed so much so I am going to make another Top 10 because I have some new ones and I think everyone would like.  I still like all the ones I listed but there are some newer ones that I want to share with everyone.

How has your blogging changed from last year to this year?

Mama’s Losin’ It

Copyright secured by Digiprove © 2013 Margaret Margaret

MS Tuesdays-Medications That Don’t Work For Me

April 10, 2012 By

This week for MS Tuesdays I am going to talk about the  medications that I have taken to treat MS and why they didn’t work for me.  I have tried quite a few of them and I hope that people that this might help someone who is having a hard time finding a treatment that may work for them.  Please don’t base your choice for treatment on this post because just because something didn’t work for me doesn’t mean that it won’t work for you.  My best advice to research them and then with the help of your doctor go with the one that you both think will work the best for you.

I have taken 3 treatments other than the Tysabri that I am taking right now.  I have taken Avonex, Betaseron, & Copaxone.  I am going to talk a little bit about each one and how the effected me while I was taking them.

  • Avonex- I started out on this medication when I was diagnosed at 15.  Let me just say that this medication I took on and off for years because it was the one medication at the time that had the least amount of shots a week that you had to take.  This medication was rough for me to say the least.  They say it has flu like symptoms.  The best way to descride how the medication made me feel for the whole weekend after I took it is my skin literally hurt to have anything touch it.  It didn’t matter if I took the Benadryl like they told me to.  Every week I was sick all weekend and as time when on they said the reaction should get less and less but for me it got worse every week.  Like I said I tried this medication for years on and off because it was only taken once a week unlike all the other treatments at the time that are taken multiple times a week.
  • Betaseron-This medication is taken every other day.  So one this medication was literally sick everyday of my life because I never got used to the side effects of this medication as well.  This medications has the same side effects as Avonex has.  This one had an autoinject so that I could give myself the shot but me being me I couldn’t push the button I would sit there for an hour and in the end someone would have to come and push the button for me.  I hate giving myself shots and since no one else wanted to give me shots this medication did last long either.

Here is the link to where I talk about all the interferon treatments they have.

  • Copaxone-Now this medication isn’t an interferon so they thought that this one should work for me.  This medication is given through a shot everyday day.  Now this really didn’t work for me because I couldn’t give myself shots.  I think I tried this one for about a year but towards the end I wasn’t taking it regularly because all the injection sites would get red and develop hives.  I will also say that at this point in my treatment I was being a stubborn teenager and I just wanted to ignore the disease and act like it wasn’t part of my life.  Here is the link to the original post where I talk about all the possible side effects of this medication.

There are more than just these 3 medication out there for MS and last year the did release the first pill you can take for MS.  If you want to read more about that you can go and read this post where I wrote about it before.

The best advice I am give anyone is to research treatment options and then with the help of your doctor pick the one that will work best for you.

If you want to know more information or want me to write about something please let me know in the comments below.

Copyright secured by Digiprove © 2012 Margaret Margaret

My MS Meds

April 3, 2012 By

I am not sure if anyone would be interested in the medications I currently on for my MS but I am sure there is someone who would be interested to know what is working for me right now and all the things I have tried that hasn’t work for me over the 11 years I have be treating the MS.  For this post I am going to talk about the medications I am currently on and what I am taking them for.

Tysabri-I am currently using this to treat the MS.  I have been on it for over 3 years now and even though it is dangerous I won’t stop taking it because it is the only MS drug that is out there right now that is controlling the MS.

Baclofen- I take this three times a day.  There are some days that I may only take it once but depending on pain & how I am feeling I may take it all 3 times.  I use this for the spasms I have and I also use this because of my back injury.  If I don’t take this at night I wake up stiff in the morning and in tons of pain.

Zoloft(sertraline)-I take this once a day and it is my antidepressant.  Depression runs in my family but I also think that the MS has made mine worse and also made me super anxious.

Loritab- I use this as needed for pain.  I get 20 pills a month and I usually use them all but  most of them are use the weekend and week after my infusion because that is when I tend to have the most pain.

Fiorinal- I use this for my migraines.  I have had migraines since I was in 5th grade.  Most of the time if I can catch it at the beginning I can stop it from getting super bad but on days that I don’t catch it or it doesn’t respond to the usual things I have to take 2 of these.  The thing I love about this medication is I can still function at work while I am taking it.

I also use things such as Benadryl, Tylenol, and Ibuprofen almost daily.  If you have any questions about any of the medications please let me know.  Next time I am going to write about what MS treatments I have used and why I stopped using them.

Copyright secured by Digiprove © 2012 Margaret Margaret

DOCTORS APPOINTMENT

July 29, 2009 By

I HAD AN APPOINTMENT WITH DR. KLEIN YESTERDAY. IT WENT BETTER THAN I THOUGHT IT WOULD GO. I THOUGHT SHE WOULD BE MAD THAT I STOPPED A MEDICATION BUT SHE WASN’T. SHE UNDERSTOOD THAT I STOPPED IT BECAUSE OF THE WEIGHT GAIN. SO SHE PUT ME ON A NEW MEDICATION AND WE WILL SEE WHAT HAPPENS WITH IT. I KNOW IT WILL HELP MY BACK BUT I DON’T KNOW IF IT WILL HELP WITH SLEEP OR MY HEADACHES BUT HELL IT IS WORTH A TRY. AT THIS POINT I AM WILLING TO TRY ANYTHING.