Sick & Tired

Sick of multiple sclerosis

I know I have written posts about this in the past but right now it is something that is bothering me again.  I am so sick and tired of Multiple Sclerosis right now because I am tired of feeling like crap.  Everytime I go to the doctors they are switching up medications to try and make me feel better but nothing ever works.  I am just tired of everything that has to do with Multiple Sclerosis and just not feeling well.

I know my situation could always be worse which is why I don’t talk much about how I am feeling but I have reached a point where I need to write about how I feel so that I  can at least get it out and off of my chest.  I also know that in the world of MS I have been relatively lucky as far as the disease progression goes but like I said before I am just sick of the disease.

I am sick and tired of being sick and tired.  I know there really isn’t anything people can do about this at this point but I still wanted to write this because I don’t know that I have ever read a blog where someone with MS was totally honest about how much the disease sucks.  I know this will pass and I will get back to the point where the things just roll off of my back but right now I just want to bitch about it.  I also want to let others know that it is okay to be pissed off about what the disease does to us.

I am also tired of people thinking I am lazy because after I get off work the only thing I want to do is go home and go to bed.  I wish there was someway for me to explain to others how tired I get going to work everyday.  I wish I could find something to give me more energy but as it stands everything I have tried just makes things worse.  I know if I could sleep I wouldn’t be as tired but like usual my health insurance company sucks and they won’t fill the one medication that does help me sleep and I can’t  afford the medication without it being covered.

Anyway I am just bitchy and sick and this is what happens when I feel like this for months on end.  How are things going for you guys right now????

Digiprove sealCopyright secured by Digiprove © 2014 Margaret Margaret

What Is Multiple Sclerosis


I am sure  most of you know that I have Multiple Sclerosis (MS).  I was diagnosed when I was 15 or 16.  I know that many people don’t know anything about MS so I am going to write a little bit about it in order to help raise awareness to the disease and to open peoples eyes to what this disease is.

  • Multiple Sclerosis is what they call an autoimmune disease.  This means that the persons immune system for some reason decides it is going to attack some part of the body instead of only attacking viruses and things like that.   In MS the immune system decides it is going to attack the nerves of the CNS (central nervous system).  The CNS includes the brain and spinal cord.  They are not sure what triggers the immune system to think that part of the body is a invader and needs to be attacked.
  • MS symptoms happen when the immune system attacks the myelin around the nerves.  If you think of your nerves like a wire the myelin would be the protective covering around the wire.  If the nerve underneath the myelin gets hurt that is what causes the symptoms and some times causes permanent disabilities.
  • The body tries to repair the damage that is done but it is never the same. Once the nerve is damaged it won’t ever function the same again.
  • There are a lot of different symptoms that go along with this disease.  I am going to list some of the most common ones: Fatigue, problems with walking, numbness, tingling, slurred speech, tremors, stiffness, problems with vision, cognition, speech, and elimination.  Every person with MS has different symptoms. Which makes some people wonder if everyone that has MS actually has the same disease or if it isn’t a few different diseases that just get grouped in with MS.
  • Anyone can get MS.  Women are more likely to get it than men and so are people with a lighter pigmentation to there skin.  So Montel Williams who has MS is a real rarity.
  • They think MS has a genetic link but they aren’t sure what it is.  In my case there is no one in my family history of it.
  • You usually get diagnosed between the ages of 20-50.  I was a rarity and was diagnosed at age 15 or 16.  Although younger patients are now getting diagnosed because doctors are starting to look for it at a younger ages.  I have noticed though that I have had lots of activity show up on scans but I haven’t had many flare ups that people could see.  In fact if I didn’t tell you I had MS and what symptoms I do have you can’t tell I have it all.
  • MS is rarely fatal.  Most of the time people with MS with get a common cold of the flu and that is what will end up taking their lives.
  • There are several treatments out there that each do things differently.  I am on one called Tysabri and it is the most expensive and most dangerous of the drugs.  All of the current MS treatments are expensive and it makes it hard for people who don’t have insurance or even with insurance to afford.
  • It has been shown that treating the disease helps  to stop the progression of the disease but since all the treatments are so expensive there are many people who simply can’t afford to treat the disease.
  • There is always new treatments in the works and exciting things happening in research that hold so much hope for future generations.  They came out last year with the first pill you can take once a day for treatment.  Up until the pill came out all the treatments were either shots or an infusion.
  • There is currently no cure for MS.

I think I  covered most of the major parts of the disease but if you have questions or want any more information please let a comment and I will answer your questions!

Digiprove sealCopyright secured by Digiprove © 2012 Margaret Margaret

Can’t Argue With Stupid!

I am going to start by saying that this post turned into arant about things that I haven’t written about before.  Now I am sure there will be people who don’tknow the whole situation and will judge me because of what I am going to type.  Just let me tell you that what you are aboutto read is mild compared to what he done to me in the course of our marriageand he is reading this then oh well!!! This is my blog if you don’t like it don’t read it!!
So a few weeks ago my husband sent me a message and asked mehow I was doing because he hadn’t heard from me in months.  I told him to just leave me alone because Iwasn’t happy with him at all.  He thenproceeds to ask why I was mad at him.  Itold him because of the credit card.  Forthose that don’t know the story of the credit card here it is.  While we were married and getting along wegot a credit card for my husband to use instead of taking out cash advancesbecause the credit card had a lower interest rate.  After we split up this last time I finallygot them to turn off the card after the total was to almost $11,000.  So then we are left to pay off that amountbut he couldn’t charge anymore on the card. We needless to say he pays on it from time to time and up until recentlyI have refused to pay on it because I am not the one who ran it up.  Not to mention I have so many doctor billsbecause he took me off of his insurance and didn’t tell me but that is a wholedifferent post.  
Anyway back to the credit card.  I have been getting calls from the creditcard company because he doesn’t pay it like he should.  I have gotten tired of my grandparentsbitching about the credit card company calling all the time so I set uppayments for the next year to shut them up for a year.  After the year is done I will figure out howI am going to pay for the rest of it.   After I tell him I mad about the credit cardthis is the message he sends me “I paid the credit card in October! “  I just sat there with a dumb look on my facebecause of what he said.  I didn’trespond then and I still haven’t responded to him.  Does he really think that you only have topay bills once a year?????  I finallycame to the realization that I can’t argue with someone who is that dumbbecause it is a total waste of my time!
So that is the story of the dumbest thing I have ever hear!

PhotobucketMyFreeCopyright.com Registered & Protected