I recently had an MRI and I also have something going on with my eyes that I wanted to document so that if I needed too I would be able to remember when it first started. First I am going to talk about what is going on with my sight and then I will talk about what the MRI showed along with my thoughts on it all.
So I started noticing that I am getting major headaches for the past 6 months or so when I do a ton of reading. At first I just thought that it was because I needed to start wearing my glasses again so I figured I would go to the eye doctor and get an updated prescription and that I would be back to normal after that. When I went and saw my eye doctor he basically told me he wasn’t sure what was going on because he couldn’t get my vision to correct which is a huge change from what it used to be like. I was referred to see an opthamologist and I still haven’t made an appointment because I am waiting to talk with my neurologist about it first.
If I am being honest I was hoping that the MRI would show that the disease was active or that it had been active because I was hoping that whatever is going on with my eyes could go back to normal. The MRI showed that the disease is stable and that it hasn’t been active in over 6 years which I know is a great thing but I am not happy about it. Since the MS hasn’t been active I now have to go see another doctor about my eyes because the headaches I have been getting need to go.
When I was diagnosed with MS I never thought that I could go blind. I have come accept that I might end up not being able to walk but I am struggling with the fact that I could go blind. For me going blind would be the worst possible thing that could happen to me because I can’t imagine not being able to read books anymore. I know there are audio books and things like that but I love reading actual books and not being able to do that anymore makes me truly depressed.
Anyway that is the update for now. I will have a follow up post about my eyes after I see my neurologist and make the appointment with the opthamologist.
How are things going with you guys?
This week’s MS Tuesday post is going to be an update to my post where I talk about the treatments there are for Multiple Sclerosis. If you want to check out the original post you can click here but I am going to copy and paste the old post and updated it with the new treatments that have come out since that post was originally published.
I am going to do a small overview of the different Multiple Sclerosis medications out there right now. I want to start by saying that there is no cure of MS right now. There are a few medications that will hopefully slow the progression on the disease.
The first group of drugs are called Immune modulating drugs. They work by keeping the immune cells from interacting with other cells. This group consists of 3 different drugs they are called Betaseron, Rebif, and Avonex. There is one other drug that is under this type of medication and it is Copaxone. This one is made of amino acids and works differently than the interferon’s.
There is Tysabri that attaches itself to the blood brain barrier and doesn’t let immune cells into the brain. There are several other treatments such as: Novantrone, Cytoxan, Imuran, Rheumatrex, and Trexall. All of those treatments are drugs that will suppress the immune system.
Since I posted the original post they have come out with several pill’s that you can now take. Before you had to have shots and/or an infusion so coming out with pills was huge for people who have MS. The names of the pills are: Gilenya, Tecfidera and Aubagio. I don’t know much about the new drugs out because right now Tysabri is still working for me so I am not in a hurry to try any new medication right now.
They will sometimes give a person steroid treatment if they are having an MS flare up or relapse. I have been given steroids several times and I will always refuse them now. I don’t think they really didn’t anything but make me gain weight and make my eyes see funny colors. I can see why they do them but I would rather have some disability than deal with the side effects of the drugs.
I have taken several different MS medications and if you would like to know which ones I have taken and how they affected me please let me know. There are also medications that we are given to help manage side effects of medications and also to deal with how the disease affects each of us as well. If you would like to know anything else please let me know!