MS

MS Tuesday-Crazy Things I Deal With

MSI was reading this post last week and I loved how it described what some of this things that people Multiple Sclerosis go through and it made me want to list a few of the things that I deal with because of the MS.  I know that people who are around me don’t know what I go through most of the time because I am not the kind of person who complains or even talks about what I am feeling so I think this list will help others who are newly diagnosed to know that they aren’t alone.  So here goes the list:

  • Right now the number one thing I am dealing with is insomnia & extreme fatigue.  I wish there as a way to explain how it the fatigue I am experiencing is different from just a regular person feeling tired.  The best way to describe it that I can come up with is that it takes to much energy to even breath.  If I could stop breathing I would because it takes more energy than I have at that moment.
  • My fingers have been totally numb for about 6 years or so.  When it first happened it was scary because I couldn’t type or really do anything.  I taught myself to type and how to do everything that I used to do.  The reason that this bugs me is because there are somethings that I touch that I have to drop because I can’t stand how they feel on my fingers.
  • I get random shooting pains that come out of no where and go away as quickly as they came.
  • Headaches/Migraines: I have been struggling with these before I was diagnosed.  I am pretty sure that the migraines I get are part of my MS because they have never really said one way or another.
  • My legs just deciding that they no longer need to work when I am walking or when I go to stand up from sitting.

Those are the main things that I deal with on a daily basis.  I know there are more things but because of the whole lack of sleep and fatigue those are the only ones I can think of.

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Sick & Tired

Sick of multiple sclerosis

I know I have written posts about this in the past but right now it is something that is bothering me again.  I am so sick and tired of Multiple Sclerosis right now because I am tired of feeling like crap.  Everytime I go to the doctors they are switching up medications to try and make me feel better but nothing ever works.  I am just tired of everything that has to do with Multiple Sclerosis and just not feeling well.

I know my situation could always be worse which is why I don’t talk much about how I am feeling but I have reached a point where I need to write about how I feel so that I  can at least get it out and off of my chest.  I also know that in the world of MS I have been relatively lucky as far as the disease progression goes but like I said before I am just sick of the disease.

I am sick and tired of being sick and tired.  I know there really isn’t anything people can do about this at this point but I still wanted to write this because I don’t know that I have ever read a blog where someone with MS was totally honest about how much the disease sucks.  I know this will pass and I will get back to the point where the things just roll off of my back but right now I just want to bitch about it.  I also want to let others know that it is okay to be pissed off about what the disease does to us.

I am also tired of people thinking I am lazy because after I get off work the only thing I want to do is go home and go to bed.  I wish there was someway for me to explain to others how tired I get going to work everyday.  I wish I could find something to give me more energy but as it stands everything I have tried just makes things worse.  I know if I could sleep I wouldn’t be as tired but like usual my health insurance company sucks and they won’t fill the one medication that does help me sleep and I can’t  afford the medication without it being covered.

Anyway I am just bitchy and sick and this is what happens when I feel like this for months on end.  How are things going for you guys right now????

Digiprove sealCopyright secured by Digiprove © 2014 Margaret Margaret

So Frustrated!

So Frustrated

I got the idea for this post from a past writers workshop and I knew when I saw it that I had to write about it.  The prompt is: Something that frustrates you.  I knew I had to write about it because I find myself getting frustrated easily lately and I figured this might help me get the things off my chest and maybe even get over some of them.  Anyway here goes the list of things that are currently frustrating me.

  • Idiot drivers who refuse to use their blinkers before they change lanes.  I also am so tired of people cutting me off and then getting pissed off at me when I honk at them.  I guess I should just be okay with getting cut off and almost getting in a wreck.  I will try and remember that next time.
  • I answer the phones at work and I am so frustrated with people I work with not answering their calls and also never returning their voicemails.  I am so tired of getting bitched at by the customers who get pissed off because they are never getting calls back.  I understand the customers being pissed off but it isn’t my problem and I can’t make anyone answer their calls and/or listen to their voicemails.
  • I am frustrated that I can’t figure out how to make Elinore stopping pooping outside of the litter box.  I wish I knew what caused her  to start doing this let alone how in the hell I am going to make her stop doing this.  If you have any suggestions please let me because we are all at our wits end with her.
  • I am super frustrated with my health and not knowing what is going on.  I hate having Multiple Sclerosis because you never know what is going to happen and what the coming day will bring.  I am so tired of not knowing what is going to happen or not knowing what is really going on because there is no way to really know.

Those are a few of things that I am frustrated about right now.  I know there are more things but those are top 4 things that have me super frustrated right now.

Do you have any advice on how to deal with any of these?  What are you frustrated about right now?

Digiprove sealCopyright secured by Digiprove © 2014 Margaret Margaret

MS Tuesday-A Few New MS Graphics

One

One

I chose another prompt from the Daily Post blog and the one I chose this time is:

If you could have a guarantee that one, specific person was reading your blog, who would you want that person to be? Why? What do you want to say to them?

When I read this prompt I knew I wanted to write about it but I wasn’t sure who I would want the one person to be.  I have sat and thought about it and I know who I wouldn’t want to read my blog but as for someone who would I am not so sure.

I don’t think I could just pick one person so I am going to change it to a group of people.  Even as I try and have it be a group of people I still have more than one so I guess I am totally breaking all the rules and just going to list 2 groups of people.

  • I wish young people who are getting diagnosed with Multiple Sclerosis at a young age like I did would read this blog.  I know when I was diagnosed it sucked that there was no one around me that was my age.  When we would go to events I was always the youngest person and I wish I would have had someone I could relate to.  It is hard to be 16 years old and be diagnosed with a disease that can’t be cured.
  • I would want book-worms to read my blog because I know before I got into reviewing books I had a really hard time figuring out what to read next and things like that.  I wish I would have had a blog or place to go where I would read reviews of books and a place to read about different types of books.

Those are the two groups of people I would like to read my blog because I think it would be interesting for them.  I am sure there are other groups that would like to read my blog but those are the 2 main groups that I would like to read it.

Who would you want to read your blog?

Digiprove sealCopyright secured by Digiprove © 2014 Margaret Margaret

Hi, My Name Is . . .

My Name Is . . .

This was a prompt from last weeks writers workshop and I had to write about it because it was such a fun topic and there are tons of things that could complete the sentence.  I think I am going to just list things that I am and then explain why on some of them.

  • Birth Mom-I placed my daughter for adoption when I was 20.
  • Blogger
  • Daughter
  • Mom to two crazy cats
  • Book lover
  • Introvert
  • Person who truly loves to be alone
  • Huge football fan-I will watch pretty much any game but I love the University of Utah & the Baltimore Ravens.
  • Suffer of an invisible illness-Multiple Sclerosis
  • College dropout
  • Blog Designer

Those are just the few things that came first to me.  I know I could go on and on with a list but no one has time to read that.

How would you answer the sentence?

Digiprove sealCopyright secured by Digiprove © 2013 Margaret Margaret