Month: February 2010

The questions..
1. Would you rather bungee jump or sky dive?
I would love to say that I would do both of them but when it came down to it I know I wouldn’t be able to do either of them.
2. When using a public restroom to you squat over the seat or sit?
Sit on the seat.
3. Favorite flower?
Orange Roses
4. Pedicure or manicure?
Both!!!!
5. How many siblings do you have?
A bother that is younger than me and a sister that lives in Texas.  Oh and a step sister 
6. Do you pee in the shower? (gasp!)
Not that I can recall
7. Bikini, tankini, or one piece?
None!  I haven’t owned one since I was in high school and I don’t plan on owning one.
8. Where do you hate to shop at, but go there anyway?
Wal-Mart.  They are so cheap so I always end up their anyways.

Julia Roberts

Saturday 9: Should I Stay or Should I Go
1. Have you ever been on a date and you had to tell the person to just go away?
No I have never had to do that thank god!  I may have too though if I start dating again.
2. Do you wish you were someplace else right now? If yes, where?
Nope not really.  I usually pretty easy to please.
3. Do you have any pet peeves?
A lot of them.  One of the biggest ones is listening to people chew when they are eating.  I will get up and leave the room because I can’t deal with it.
4. Tell us about a guilty pleasure of yours.
I don’t know that I really have any.  I don’t let myself feel guilty about a lot.  I guess eating pizza or Subway is one though because I shouldn’t eat them because of the Gluten but I can’t stop.
5. If you could change places and become a celebrity, who would you’d like to be?
No one.  I wouldn’t deal with publicity well.  I am happy being who I am and hiding behind my computer.
6. What do you consider your biggest talent?
I would have to say figuring out things on the computer!
7. Do you have a favorite actor/actress that is not a big star, yet they are your favorite?
No not really my only favorite is Julia Roberts and she is a huge star.
8. Name your five favorite rock bands of all time.

  1. Nickleback
  2. Greenday
  3. Good Charlotte
  4. Sum 41
  5. Shinedown

9. If you were to start a new relationship (for whatever reason), how much of your sexual history would you share? Would you resort to lying?
I would be totally honest.  If they asked I would tell them.  I feel like you shouldn’t hid things from people when you are in a relationship.  It just isn’t right and I also am not ashamed for who I am and what I have done in my life.

Finally This Week Is Half Done!

I want to thank everyone for all the kind words and for sticking behind me.  It is nice to know that I am really not alone in all of this.  Now not only do I have Misti, and Jill I also have people who read my blog and are there if I just need to vent or blow off some steam.  I am so thankful that people can see like I do why I can’t trust him again and why it just won’t work.  I feel like I am on a roller coaster with him anymore.  One day he is nice and caring and then other days he is a total ass about everything.  I just feel like I am going crazy.  Right now he is being nice to me and I hope that is stays this way but god only knows when he will be a dick head to me again.  I am trying to hard to stay positive about the whole situation and know that in the end it will be okay but when he is a jerk it just makes me feel so bad about everything.  I hope that he will figure it out soon or I am going to have to stop talking to him because I can’t continue to do this whole up and down thing with him anymore.  That is it for today because my brain is tired and I am emotional exhausted. 

I hope everyone is having a great day!

Me & The MS

This post has been harder for me to write than when I posted Brita’s story.  I began to get sick when I was in 10th grade.  The first really symptom that I can remember is my left leg started to drag.  It would just stop working at random times.  I can remember in gym class that year we had to run the mile for a grade and I did my best but I was going to fail the class because I could run it fast enough because my leg was dragging.   We went to the doctors and lets just say the only reason they did an MRI was because my grandma pushed for it.  When that came back they called us in because they needed to talk to us.  They said that there was what they call lesions on the brain.  They show up as white spots on the brain.  They told us that they needed to do a spinal tap to rule out MS. 

The spinal tap in and of it self was a huge ordeal to say the least.  I got the spinal tap on a Thursday and by Saturday I was so sick.  I had a huge headache and was throwing up.  So we went to the ER because it was obvious that my spinal tap hadn’t sealed.  When we got the ER they made me lay in the waiting for about an hour until they took me back to a room.  After they knew what was going on they wanted to send me home because the guy that could fix it was on call and he didn’t want to come and do a blood patch.  He finally came in after my grandparents raised a living hell because I could have died if I didn’t get a blood patch ASAP.
When the results of the spinal tap came back they called us in again and told my and my grandparents and I had Multiple Sclerosis.  They wanted to start me right away on Avonex.  I don’t really remember much of the next couple of months.  I think I was still numb to the whole situation.  What I do remember is how sick the medication made me every weekend.  I took the shot on Friday nights and spent the whole weekend with flu like symptoms. I stopped taking that medication after awhile and started on Copaxone.  With that one I had to take a shot everyday and that didn’t last very long either.
I was pretty stable and not much went on until a year ago and that is when my hand went numb and it got hard to do anything with them.  Slow I have been able to use them more but it feels like they are asleep all of the time anymore.  I started on Tysabri about a year ago and so far it has worked the best but I also has a major problem with it as well.  You can develop a condition known as PML that will basically make you a vegetable.  They are finding out that the longer you are on the drug the higher your chances are of getting this serious condition. I am not sure how much longer I will be on this medication but I don’t have any other options right now.
That is my story in a nutshell.  If you have any other question feel free to ask me I will answer any questions that you may have.   


FYI About Multiple Sclerosis

First I am going to post some helpful information before I post my story so that you will be able to follow along a little bit better.

  • Multiple Sclerosis is what they call an autoimmune disease.  This means that the person immune system for some reason decided it is going to attack so part of the body that it shouldn’t attack.   In MS the immune system decides it is going to attack the nerves of the CNS (central nervous system).  They are not sure what triggers the immune system to think that part of the body is a invader and needs to be attacked.
  • There are a lot of different symptoms that go along with this disease.  I am going to list some of the most common ones: Fatigue, problems with walking, numbness, tingling, slurred speech, tremors, stiffness, problems with vision, cognition, speech, and elimination.  Every person with MS has different symptoms.
  • Anyone can get MS.  Women are more like to get it than men and so are people with a lighter pigmentation to there skin.  So Montel Williams who has MS is a real rarity.  They think MS has a genetic link but they aren’t sure what it is.  In my case there is no one in my family history of it.  You usually get diagnosed between the ages of 20-50.  I was a rarity and was diagnosed at age 16.  Although younger patients are now getting diagnosed because doctors are starting to look for it at a younger ages.
  • MS symptoms happen when the immune system attacks the myelin around the nerves.  If you think of your nerves like a wire the myelin would be the protective covering around the wire.  If the nerve underneath the myelin gets hurt that is what causes the symptoms and some times permanent disabilities.
  • The body tries to repair the damage that is done but it is never the same the the nerve never really functions the same.
  • MS is rarely fatal.  Most of the time people with MS with get a common cold of the flu and that is what will end up taking their lives.
  • There are several treatments out there that each do things differently.  I am on one called Tysabri and it is the most expensive and most dangerous of the drugs.  All of the current MS treatments are expensive and it makes it hard for people like me who have the disease to get the treatments that they need.  There is always new treatments in the works and exciting things happening in research that hold so much hope for future generations.
  • There is currently no cure for MS.



That is all I can think to tell you.  If you have any questions please feel free to ask them and I will answer them all in another post.  I hope this will help everyone understand my story a little bit better.  I am going to post my story next Thursday.  So if you have any questions please ask so everything will be clear to you when I post my story.

Please Stop Laughing At Me

I just finished reading “Please Stop Laughing At Me” by Jodee Blanco.  I have never written a book review but I loved this book and wanted to share some parts of it with you.  More than that though I really think that everyone should read this especially teenagers.  This book is about the bullying that she endured while she went to school.  She had to go through this all through school and now as an adult isn very successful and is trying to spread more awareness of bullying in schools.
I also had to endure bullying from about 5th grade until I graduated.  I got 2 years of relief when I went to a different school but when I came back it started up again.  Now what I endured wasn’t nearly as bad she what she went through but it was bad enough to make my life hell.  I think the bullying is on the rise and parents and kids need to take more of a stand to try and stop it.  I know it won’t ever be totally gone away but maybe if kids read this book they will see what it does to kids and more kids will try and stand up for the kids that are always picked on.