MS

Guest Post- Applying for Social Security Disability with Multiple Sclerosis

I was contacted Molly Clarke  about doing a post on my blog about applying for Disability Social Security and I thought this post would fit in with my blog and could possible be useful to anyone out there that needs to apply as well.

 

Applying for Social Security Disability with Multiple Sclerosis

Multiple Sclerosis, or MS, is a chronic and progressive autoimmune disease that affects the central nervous system. Symptoms can become debilitating and worsen over time, eventually leading to loss of function that prevents gainful employment. MS comes in multiple forms, including:

 

  • Relapsing-remitting MS (RRMS)
  • Primary-progressive MS (PPMS)
  • Secondary-progressive MS (SPMS)
  • Progressive-relapsing MS (PRMS)


Symptoms that accompany each form vary, as does the progressive nature of the disease; however, the Social Security Administration (SSA) recognizes each as a disabling condition that can potentially meet the eligibility requirements for receiving Social Security Disability (SSD) benefits.

Meeting the SSA’s Definition of Disability

To meet the basic eligibility requirements for disability benefits, your disability must be expected to last at least twelve months. Because MS is an episodic autoimmune disease, meaning there are periods of symptom flare-ups and times when no symptoms may be present at all, satisfying this eligibility requirement can be a bit challenging.

The SSA will closely review your medical records to determine:

 

  • How often your episodes occur;
  • How long your episodes last;
  • How much time passes in between episodes;
  • What your symptoms are during episodes; and
  • How impaired you are during your periods of remission.


Because the SSA recognizes the episodic and progressive nature of MS, applications submitted with the diagnosis are typically evaluated first under the MS listing, and then under the “residual functional analysis”, in order to determine if the applicant qualifies.

The SSA’s Blue Book Listing for MS

The SSA utilizes a manual known as the Blue Book to evaluate conditions under standard disability listings. MS appears in the Blue Book under Section 11.00 – Neurological. To meet this listing and qualify for disability benefits, your application and medical records must prove:

 

  • You have partial paralysis, tremors, or involuntary movements in at least two of your limbs, impairing your ability to walk or use your hands;
  • You’ve suffered severe vision loss which cannot be corrected by wearing glasses;
  • You experience mood disturbances, decreased mental capacity, or memory loss as a result of an organic mental disorder; and/or
  • You suffer from muscle weakness and severe fatigue resulting from disruption of signals from the central nervous system, a cornerstone symptom of MS.

MS and Residual Functional Capacity

If your MS does not meet the SSA’s Blue Book listing, you may still qualify for Social Security Disability benefits. The SSA will evaluate your residual functional capacity (RFC) to determine the severity of your condition and whether or not it prevents you from finding and maintaining gainful employment.

Your sensory, memory, mental and physical limitations will be evaluated during the RFC analysis. The SSA will also look at your employment history, your education level, and your acquired job skills to determine if you are able to hold a job.

If your MS is found to limit you so that you cannot reasonably be expected to work, then you may qualify for benefits under a “medical vocational allowance”. This means that your MS symptoms do not meet the Blue Book listing but still prevent you from working.

Medical Evidence in Your MS Disability Application

To successfully apply for disability benefits you must provide medical records that back up your claim. Your application must include records such as:

 

  • MRIs, EEGs, CT scans, x-rays, spinal tap, and other diagnostic results documenting abnormalities and a formal MS diagnosis;
  • Vision, hearing and speech evaluation exams, if applicable;
  • All other medical records related to the diagnosis and treatment of your MS;
  • Results of mental or psychological evaluations, if applicable;
  • Documentation of the frequency, duration and severity of your episodes; and/or
  • Statements from your treating physician(s) documenting your diagnosis, prognosis and functional capacity.


Seeking Assistance

Because filing for disability benefits can be a long and complicated process, you may find that you need to seek the assistance of a Social Security advocate or attorney. A professional will be able to guide you through the process and possibly increase your chances of approval.

Submitted by: Molly Clarke
http://www.socialsecurity-disability.org/blog

Digiprove sealCopyright secured by Digiprove © 2013 Margaret Margaret

Things That Drive Me Insane-Insurance Companies

Things That Drive Me Insane

 

I am sure everyone knows that I have Multiple Sclerosis and because  of the medication I use to treat it I have to get MRI’s every 6 months. I had my latest MRI on Saturday the 16th of February.  I received a call on the Friday before my MRI from my health insurance company and all I could think was great now what is their deal.

For a little back story I have always had problems with insurance companies.  It always seems like since they have to pay out for me they tend to give me the run around and what not.  One time a few years ago I actually had an insurance company make everyone that they paid money to send the money back to them and then I had to fight with them in order to get them to pay for the claims that they requested the money back for.  Lets just say that fixing the mess took over a year and I am still sure I paid to much on a few of the claims because I just got tired of fighting with them about it all.

Anyway back to the story  when I answered the phone they basically wanted me to change the place of my MRI because the place I was getting it done at wasn’t one of their preferred providers.  I was dumbfounded because  I was having the MRI the next  day and I know enough to know that there is no way that there would be an opening on a Saturday to get a MRI if most places even do MRI’s on Saturdays.

I understand why they called about it but they didn’t have to give me hard time when I told them that I was okay with paying more because my doctor works out of the hospital and it is easier for me to keep track of my records and what not if everything is done in the same spot.  I get that they want to save me money but if I am okay with paying more than they really should just say okay and get off the phone.

I am glad they were trying to save me money and everything but in the end if I am okay spending more money then just leave it alone.  I may spend more money for the MRI but it means that I don’t have to worry about my doctor getting the results or anything like that because she will be able to just pull them up in the computer.  I have had the scans done at other places before and it always turns into a big hassle when it comes to getting the results and things like that.  So that is the latest thing that drove me insane.

What is driving you insane this week?

Digiprove sealCopyright secured by Digiprove © 2013 Margaret Margaret

Mulitple Sclerosis Update

Mulitple Sclerosis UpdateIt has been quite awhile since I have written and update about Multiple Sclerosis and what has been going with that.  I had an MRI at the end of August and it showed that I am still 100% stable which is amazing for me.  The MS has always been very active in me so that fact that I have been stable for about 4 years or so now is huge for me.  I know it has everything to do with the Tysabri and that makes it all worth it for me.

While I was at my doctors appointment she asked me is I wanted to get tested for the JC virus, which for those people who don’t know it is what cause people on Tysabri to get PML.  I told her no because I won’t stop taking Tysabri so I really don’t want to worry about it if I do have the JC virus.  She did tell me that if and when I do have another relapse I will have to get the test done to rule out that  I haven’t developed PML.  My chances of developing it now that I have been on it for about 4 years is really low so I am not worrying about it all.

Other than that there hasn’t been any changes.  I still have ups and downs when it comes to how I feel and things like that but that is pretty normal.  So there isn’t much else I can say.  I am stable and doing pretty well.

If you have any questions please let me know!

I Am How Old?!?!?!?!

 

How OldAt that beginning of September I had an appointment with my Multiple Sclerosis doctor to get the results for my latest MRI.  I have an update coming up that will let everyone know the results and all the fun stuff.

Anyways back to the story at hand.  I was sitting in the office meeting with the doctor and she asked me how old I was.  I said I was 26 and left it at that.  Well after I got home from the doctors I started to wonder if I was actually 26 or if I was 27.

I was looking at the print out that they gave me after my appointment that says what we are doing and when my next appointments are.  The paper said that I was 27.  I had to go and ask my grandma how old I was and she said she thought I was 27.  Well come to find out I spent all year thinking I was 26 and turning 27 next month.  Looks like I was wrong and I am turning 28 next month so I vote that I get to have two birthdays because I got two years older this year!

All I can say is that I get to have two birthdays this year and I feel like a total idiot!!!! Gotta love not knowing how old you are!  The other funny thing is as long as I can remember everyone in my family has always forgotten how old I am so I guess I am just following their lead!

What is one thing you forgot that you shouldn’t have forgotten?

Digiprove sealCopyright secured by Digiprove © 2012 Margaret Margaret

MS Tuesday-Depression & Anxiety

I am going to talk about depression and anxiety which are two  Multiple Sclerosis symptoms that have be living with for the past couple of years.  Growing up never had an issue with anxiety and what issue I did have with depression I was able to control and I didn’t have to take medication for it.

About two years ago I had to get on medication for depression because I literally could barely function at work and I was always on edge.  After I started the medication it helped but I noticed I could no longer handle things that I used to love to do.

For example I have always loved being alone.  My grandparents went on a cruise for 10 days last month and I was so anxious because I was home alone most of the time.  The day after they left I literally sat in my room because I was so anxious.  I also found myself checking the door locks a hundred times where as when they are home I never check them unless I have to get up and let one of the cats in.

I believe that in my case my depression and anxiety are cause by the MS.  I know that not everyone with MS will have both of these symptoms and that some people who have these symptoms but not have MS.

Before I started on Tysabri when I would have MRI’s to check and see what the disease was doing I always had active lesions but I rarely had any symptoms.  I believe that while I at the time didn’t show any outward symptoms that those active lesions are what caused my anxiety and depression issues that I currently struggle with.

Right now I take Zoloft for the depression and I don’t treat the anxiety because I have learned how to talk myself through it.  I also have found that removing myself from the situation that is causing the anxiety is a great way for me to cope with it as well.

I received the book called “It’s Not All in Your Head: Anxiety, Depression, Mood Swings, and Multiple Sclerosis” by Patricia Farrell.  I can’t remember the site where I was signed up and got the book for free but from the little bit of it that I have read it can’t wait to read more of it.

I would recommend the book to anyone with MS or anyone that has a family member or friend with MS.  Once I am finished with it I will for sure write a review and I think I will give it away to someone with MS.

In the end I want people to know that is you have developed anxiety or depression that you aren’t alone and don’t be afraid to ask for help.  At first it was hard for me to ask the doctor about it and start the medication but the more I learn about MS and what it can cause I understand why I have had to go on medication.

Digiprove sealCopyright secured by Digiprove © 2012 Margaret Margaret

MS Resources

This week I decided that I would post some Multiple Sclerosis resources that I have found and that I use on a regular basis.

Tysabri
Avonex
Now I am sure there are ones I haven’t listed or haven’t found so if you have one you like please leave it in a comment and I will update this list with them.
Digiprove sealCopyright secured by Digiprove © 2012 Margaret Margaret