Well I think an update on the MS is long over due.  For all of you that did read the post where told the results of my MRI I will post a quick recap to bring you all up to speed.  When I went in to see the doctor a few weeks ago she told me that  for the first time since I was diagnosed I was stable!  It is a great feeling to know that I was finally on the drug that was helping me.  So after she told me that she then told me I had to get over whatever my issue was with the new infusion center and go.  I was and am still mad about it  but I will do what they want me to do because this is the only thing that has worked for me.  My next infusion is on the 2nd of April.  I am hoping that all goes well with it because I have to go alone because of work and the fact that Grandma is going out of town that day.
I don’t think when I wrote my last that I really got into what the medication I am on does for MS and the bad condition it could cause.  I am on a drug called Tysabri that is administered once a month by an infusion.  An infusion is something similar to what they do when you are having chemo or getting a blood transfusion.  Tysabri was released in 2004 after that it was take off of the market because a few people developed PML or Progressive multifocal leukoencephalopathy.  This is a very rare viral brain condition that causes progressive inflammation of the white matter in the brain.  From what I was told this virus lives in the kidneys of people but most people without compromised immune systems can keep it under control and it causes no problems.  Tysabri works by attaching to the blood brain barrier and keeping the immune cells out of the brain.  So because the immune system can’t get up into the brain PML can take over.  There is currently no test to test for the virus.  They released the medication back on the market in 2006 with strict warnings and stipulations.  When I signed up to do this drug I had to sign a waiver saying that the FDA could look at my medical records at any point.
So far this is the only thing I have found to work.  I know the risk of PML greatly increases after you have been on the drug for two years and I am about at that point.  Today 31 0r 33 patients have gotten PML so that makes the odds about 2 in 1000 that you will get it.  For me the benefits still out weigh the risks.  That is a little bit about the drug that I am on let me know if you have any other questions about it!

A Day Late


Sunday Stealing: The Eight Tens Meme

TEN TO START.

1. Are you single?
Yes I am
2. Are you happy?
Sometimes
3. Are you bored?
No and if I was I wouldn’t admit it 
4. Are you naked?
No that would be weird 
5. Are you a blonde?
Nope
6. Are you moody?
Yep
7. Are you a lover/hater?
Depends on the situation
8. Are you hot/cold?
I am ok- A little cold but not to bad
9. Are you Irish?
No
10. Are you Asian?
No
TEN FACTS.

1. Name:
Margaret
2. Nicknames:
Bunnie
3. Birth mark:
I don’t have any
4. Hair color:
Brown but right now it has some red and black in it.
5. Natural hair color:
Brown
6. Eye color:
Blue
7. Height:
5’4″
8. Facebook Mood:
Blah
9. Favorite color:
Purple
10. One Place to Visit:
Hawaii
TEN THINGS ABOUT YOUR LOVE LIFE. 

1. Do you believe in love at first sight?
Yes
2. Do you believe in soul mates?
Yes
4. Have you ever been hurt emotionally?
Yes I have
5. Have you ever broken someone’s heart?
Probably
6. Have you ever been cheated on?
Yes
7. Have you ever liked someone and not told them?
A lot of the time
8. Are you afraid of commitment?
I am now but I wasn’t before
9. Who was the last person you hugged?
Probably Misti
10. Who was the last person you kissed?
Probably my husband
TEN THIS OR THAT.

1. Love or lust?
Love
3. Cats or dogs?
Cats
4. A few best friends or many regular friends?
Few best friends
5. Television or internet?
Internet
6. Chinese Or Indian?
Chinese
7. Wild night out or romantic night in?
Either!
8. Money or Happiness?
Happiness
9. Night or day?
Night
10. MSN or phone?
Phone
TEN HAVE YOU EVER. 

1. Been caught sneaking out?
Nope
2. Been skinny dipping?
No
3. Stolen?
No
4. Bungee jumped?
Nope and I am never going to try it either
5. Lied to someone you liked?
Yes
6. Finished an entire jaw breaker?
Yes
8. Wanted an ex bf/gf back?
Of course who hasn’t
9. Cried because you lost a pet?
Sure have
10. Wanted to disappear?
All the time anymore
TEN PREFERENCES IN A PARTNER. 

1. Smile or eyes?
Smile
2. Light or dark hair?
Either
3. Hugs or kisses?
Hugs
4. Shorter or taller?
Taller
5. Intelligence or attraction?
Intelligence
6. Romantic or spontaneous?
Romantic
7. Funny or serious?
Both depending on the situation
8. Older or Younger?
Older
9. Outgoing or quiet?
Quiet
10. Sweet or Bad Ass?
Sweet
TEN HAVE YOU’S. 

1. Ever performed in front of a large crowd?
No
2. Ever done drugs?
No
3. Ever been pregnant?
Yes
5. Ever been on a cheer leading team?
No
6. Ever Been on a dance team?
No
7. Ever been on a sports team?
Yes
8. Ever been in a drama play/production?
No
9. Ever owned a BMW, Mercedes Benz, Escalade, Hummer or Bentley?
Nope
10. Ever been in a rap video?
Nope
TEN LASTS. 

1. Last phone call you made:
Tim
2. Last person you hung out with:
Misti
4. Last time you worked:
Now
5. Last person you tackled:
No one
6. Last person you IM’d:
Probably Josh
8. Last person(s) you went to the movies with:
Josh
9. Last thing you missed:
My old life
10. Last thing you ate:
Probably pineapple last night

Tell Me To My Face

Saturday 9: Just One Look
1. How vein are you about how you look?
I could really careless about how I look.  I am me if you don’t like it then don’t look at me!
2. When you were little what was your favorite TV show?
I can’t remember but I didn’t watch a lot of TV until I got sick.
3. If someone was going to make a movie or TV show about your life, who would play you and why?
I would want either Julia Roberts or Sandra Bullock because they are both great actresses.4. Who is your favorite Major League Baseball team? How about your favorite player?
I have never watched it!5. What is your favorite baseball-related movie?
Never seen any
6. What is one lesson you have learned in the past year?
Men can’t be trusted
7. Tell us about one of your childhood memories.
I don’t remember my childhood.  I blocked most of it out.
8. How do you handle sticky situations? Do you have a method? If so, what is it?
I don’t do well.  I usually just get quiet.
9. Do you think people talk about you behind your back?
I am sure they do and I don’t care if they do.  They are cowards when they do it that way.  If you have something to do then say it to my face!!!!

Paintings & Cleaning

My Little Life

1. Have you ever had a celeb sighting?
Just local news anchors is all I have ever seen.
2. What temperature do you keep your house?
About 68 but I don’t have a choice where I am at right now.  So I have a heating blanket and fan.
3. Do you notice dust at other peoples homes?
No I have never even thought about it before.
4. What’s the worst job you ever had?
Not sure but if I had to pick I would say cleaning the elementary school but most people would say when I was CNA but I loved being a butt wiper lol
5. What is your most sentimental possession?
The pictures that my great grandma painted that are in my room.

Top Three Thursdays

What are your top 3 quirks?
  1. The first one is that I am a number fanatic.  I only like odd numbers and I go to the extreme of adding the two numbers together.  For example if the number is 17 I will add 1+7=8 so that is a bad number for me.
  2. I eat in my sleep.  I will wake up and find crumbs and what not in bed because I eat and I don’t even know  I am doing it.
  3. I yell at my “cubs” like they are true children and sometimes people on my blog think they are really children. 


1. On a scale of 1-10, how superstitious are you, honestly?
Probably like a 5 or so.
2. Julius Caesar is quoted as saying, “I came, I saw, I conquered.” Which circumstance or experience of yours does this saying best describe?
Everything in my life to be honest with you.  I feel as if I have had that attitude a lot because I haven’t had any options but to conquer things that are put in front of me.
3. If I peeked in on your day like a mischievous little leprechaun, at what time would I most likely find you blogging?
While I am at work or after work in the middle of the night when I should be sleeping.
4. Re springing forward for Daylight Saving Time, is there anything you’ve ever been really early or really late for?
I always try and be places early because if I am going to be late I don’t want to go at all.
5. What are you most looking forward to concerning Spring?
The warmer weather and being able to ride around town with my sun roof open on my car.
6. Shamrocks are the national flower of Ireland and are picked on St. Patrick’s Day and worn on the lapel or shoulder. Do you wear green on St. Patty’s Day?
Yes I do only because little kids take things to far if you aren’t wearing green.
7. One of Caesar’s assassins, Casca, said, “But, for my own part, it was Greek to me,” which of course means he didn’t understand something. Probably his own lines in the play. Anyway, what is something that is “Greek to you,” something incomprehensible or indecipherable?
How some people are such idiots and can keep making the same mistakes over and over again with out learning from them the first couple of times.
8. Is March behaving more like a lion or a lamb where you live?
Both-It is bi-polar like it always is.
9. “An extra yawn one morning in the springtime, an extra snooze one night in the autumn is all that we ask in return for dazzling gifts. We borrow an hour one night in April; we pay it back with golden interest five months later.” -Winston Churchill. If you had one extra hour per day every day, what would you do with it?
Sleep or at least try and sleep because I never get enough sleep that is for sure.
10. Legend says that every Leprechaun has a pot of gold hidden deep in the Irish countryside. Aside from real gold or money, what material item would be in your dream pot of gold?
A house of my own
11. “The best things are nearest: breath in your nostrils, light in your eyes, flowers at your feet, duties at your hand, the path of God just before you.” Robert Louis Stevenson. Look around you right now and tell us about something essential or beautiful very near you that you take for granted every day.
Misti-She is always there for me and some days I take that for granted.  I try not to but if someone is always there and you work with them it is hard to not take it for granted.  At least it is for me anyways.
12. Just for a bit o’ fun, click here  and then report your Irish name.
My Irish name is: Jacinta McNamara