I thought I would so another Multiple Sclerosis Tuesday post this week. Instead of talking about anything in particular I would just write down some thoughts I have been having about MS and a little update on what is going on with me right now.
Lately I have hated the fact that diseases like MS even exist. I have gotten to know so many people that have auto-immune diseases and it just piss’s me off to know that god lets people suffer like we do. That being said I know it is in his plan for all of us and that he gave us these things because he knows we can handle them. I know that it is true but I often wonder if at times we aren’t given more than we can handle anyway that isn’t the point of this post.
I also have been wishing that people would stop judging those of us who have MS and think we are lazy because we can’t really do much. Now that being said I for the most part can keep up with anyone and if I don’t tell you I have MS right now you can’t tell. Even my own family thinks I am lazy because when I get home from work all I want to do it take my bath and go to bed. People don’t take the time to ask or even realize how much energy it takes for me to just make it through my work day.
As for an update on me nothing much has changed since my last update. I am back to getting my headaches almost every day again but I thinking that is just a part of the MS for me. Also my Psoriasis is back with a vengeance which totally sucks. It isn’t really the fact that it itch it find I am more embarrassed but it than anything else. I mean it does hurt if I find myself scratching it but other than that I can ignore it. I am glad that I wear a jacket all the time at work because it just makes me feel self conscious about myself.
That is all for this post. If there is anything at MS that you would like to know more about please let me know in the comments below and I will make sure I get it written for you.
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16 Comments on Multiple Sclerosis Tuesday-My Current Thoughts & An Update
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I have to admit that I know nothing and no one with MS but it is hard to imagine that anyone who knows you would consider you lazy and shame on them! Keep on doing what you do, love!
MryJhnsn ( recently posted…Triple Scoop with Chamberfest and #MOCACleveland
Ya people tend to just be assholes about things lol
Margaret Tidwell recently posted…A Natives Tongue by Michael D. Dennis Excerpt
Thanks for this post. My doctor is checking me for several autoimmune things based on symptoms I have. I also have a heart condition and Meneire’s Disease. You can’t see these things but they do cause suffering and it is hard when people do not understand. Personally, I never talk about it or tell people about other than immediate family and I feel like it even annoys them so I keep it to a minimum.
My daughter has something called Dyspraxia. Part of that is she has low muscle tone and has a hard time getting her body to do exactly what her brain is telling it to. I have this too but it gets better as you get older. Anyway, again you cannot see it. Even when I explain it to people they still judge harshly. I had to pull her out of dance class because the dance teachers were so hard on her for something she could not help.
It is good that people like you raise awareness of MS and other diseases that you can’t see.
Christen recently posted…College Students Make Money Without Leaving Your Dorm
I wish that people would just keep judgmental comments to themselves because no needs or wants to hear what they have to say.
Margaret Tidwell recently posted…A Natives Tongue by Michael D. Dennis Excerpt
I know very little about MS. Thank you for sharing your experiences so we can all learn from you! I recently lost my hearing in my left ear.. still trying to figure out why (likely a virus), but -one cause could be MS. (It is likely not MS because I think I would have other symptoms). Anyway… I now know the struggles of what it is like to be hard of hearing… Oh the joys you never thought you would learn about first hand! Keep up the good fight!
Meeghan recently posted…Your chance to win…!
Got to love how we always learn things we never thought we would have to learn in our lives.
Margaret Tidwell recently posted…Harte’s Peak by Maria Michaels
I also know very little about MS, but I know others battling various different illnesses. Each one has its own struggles, and it is important for those around them to understand what those are, and support them as much as possible. I wish you had more support! Keep your head up, and keep your posts coming!
Kristen Kelly recently posted…zulily Weekly Preview 6/24 – 6/30: Back to School, Coach, Star Wars and More!
Thank you!
Margaret Tidwell recently posted…Harte’s Peak by Maria Michaels
I don’t know a lot about MS but my boyfriend has an Aunt that he is very close to and she also has it. It’s very informative reading your posts so that I can understand it better. There are so many diseases that come with automatic negative connotations but I don’t think people take the time to realize how it affects the people who are actually dealing with it. Thanks for sharing your story!
Shelby Irwin recently posted…Moving Mayhem: Closet Purging and Organization
I am glad that it could help you in some way.
Margaret Tidwell recently posted…Harte’s Peak by Maria Michaels
I don’t really know much about MS but I do know it is really hard on people. I am glad you can still go to work and do the things you enjoy. I wouldn’t think you lazy at all.
Devon recently posted…Growing up with Transformers
Ya it is usually family that I don’t talk with for a reason that start saying stuff like that.
Margaret Tidwell recently posted…Harte’s Peak by Maria Michaels
Haters gonna hate and do it to make themselves feel better (which they don’t and look stupid in the process). My cousin has MS and also has a steel rod in her back. She has not let that stop her from living her life. She has 2 boys who are adults now. She is now confined into a wheel chair, but she still goes to her job and lives at home. She doesn’t drive anymore, and has a live in nurse, but she is living her life, her way. You live your life and love it. Don’t let the haters get you down (even family).
I am trying to that is for sure.
Margaret Tidwell recently posted…Harte’s Peak by Maria Michaels
Hi Margaret,
I’m interested to read your thoughts on MS. I also have this horrid illness. I was diagnosed two years ago. Like you, I’m relatively well at the moment as far as people can see. I do suffer with fatigue though. I get your questions and your frustration. It’s hard having an illness that isn’t always visible in its symptoms. People often don’t understand that fatigue is not the same as feeling a bit tired.
I’ve had people tell me that God chose to give me MS and that he must really trust me to give me so much to handle. I’m a Christian, but I don’t believe that God gave me, or anyone else MS. I just think that we live in an imperfect world. I like asking the questions though and not necessarily having the answers. I’m happy to have found your blog today.
Rachel recently posted…Finding Hope When Hopes Are Crushed
I am so glad that you found me as well. I have to agree I hate when people say things like must have trusted you and I really hate when people say that God doesn’t give you more than you can handle because I sure feel like he is giving me more than I can handle some days.
I am looking for people to post about MS a few times a month if this is something that would interest you please let me know!
Margaret Tidwell recently posted…A Grand Design by Amber Stockton