Month: December 2012

Mulitple Sclerosis Update

Mulitple Sclerosis UpdateIt has been quite awhile since I have written and update about Multiple Sclerosis and what has been going with that.  I had an MRI at the end of August and it showed that I am still 100% stable which is amazing for me.  The MS has always been very active in me so that fact that I have been stable for about 4 years or so now is huge for me.  I know it has everything to do with the Tysabri and that makes it all worth it for me.

While I was at my doctors appointment she asked me is I wanted to get tested for the JC virus, which for those people who don’t know it is what cause people on Tysabri to get PML.  I told her no because I won’t stop taking Tysabri so I really don’t want to worry about it if I do have the JC virus.  She did tell me that if and when I do have another relapse I will have to get the test done to rule out that  I haven’t developed PML.  My chances of developing it now that I have been on it for about 4 years is really low so I am not worrying about it all.

Other than that there hasn’t been any changes.  I still have ups and downs when it comes to how I feel and things like that but that is pretty normal.  So there isn’t much else I can say.  I am stable and doing pretty well.

If you have any questions please let me know!

Roads

A few months back I wrote a post about the new Chris Mann album and  I have since fallen in love with the the song called Roads.  Below I have posted the lyrics &  the video so that you can see what I am talking about before I tell you why I love the song.

There are roads in this life that we all travel
There are scars and there are battles where we roam
When we are lost or wherever we may go
They will always lead you home

There are roads that have lead me to another
To a friend or to a lover I have known
For every turn is a year that I have grown
As I walk along these roads

Some are long and some are weathered
Some will lead you through a storm
When you’ve gone astray you will find your way
As you walk along these roads

There were times when I stumbled and I wondered
But every choice and every step I don’t regret
Cause I have lived and I have loved like no other
I won’t fear what lies ahead

Some are long and some are weathered
Some will lead you through a storm
When you’ve gone astray you will find your way
As you walk along these roads

There are roads in this life that I have traveled
There are scars and there are battles, these I know
Cause I’d be lost but no matter where I go
They will one day lead me home
They will one day lead me home

Source

 

I am sure most of you know by now that I love music.  I always seem to find songs that fit perfectly into my life at the certain moment in time.  I received this CD in order for me to review it and I listened to it a few times and thought it was good but it ended up in my car and I didn’t listen it again up until last week.  When I randomly put in the CD while I was on my way home from work the title track just hit me differently than it did when I first heard it.  I really can’t even pick just one part of the song because I love everything the song says.

I have had a lot of personal things going on that I haven’t blogged about and I don’t think I will ever blog about and this song describes how I have been feeling lately about my life and where I see myself going.  I look at my life and I realize more than anything that this song is so true.

Since my daughters birthday this past July I have decided that I am going to go down a road that I have known I need to go down for awhile but I have been too scared to make the first step.  Now that I have been on this road for a few months I know without a doubt that this where I need to be and I finally happy with where I am at.   For the first time in years I can honestly say I am the happiest I  have been.  That being said there are things and people that I miss dearly but I know I am where I should be right now.

This is the verse that I keep reading over and over in my head.

There were times when I stumbled and I wondered
But every choice and every step I don’t regret
Cause I have lived and I have loved like no other
I won’t fear what lies ahead

I have learned that I will never regret and of the choices and decisions I have made because without all of them I wouldn’t be the person I am today.  I also am not going to live my life fearing the future because everything that happens is meant to be and will make me an even stronger person.

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