Day 3 is my idea of a perfect date. I don’t really have an idea because I hate dating. I also have no desire to date ever again. I am okay being single at least for now. I do have days that get lonely but for the most part I am much happier not having to worry about a guy and having to check in with someone.
Month: November 2010
Day 2
Day 2 is something that I have eaten today. I am going to take pictures off of the internet because I didn’t take pictures.
As you can see I ate a lot of crap today. I tend to snack all day so I eat a lot of different things!
MS Tuesdays-Tysabri & Me
This week for MS Tuesdays I am going to write about my latest infusion and the new side effects that I had with this one. I have always gotten a headache and sometimes I would have a reaction that felt like I was burning up from the inside out. Well this time I had a whole new set of side effects that I wasn’t prepared for. I had in on a Thursday because I couldn’t take Friday off and now that I look back at it and this turned out to be a good thing. Anyways, I woke up Friday and i was a little stiff but that is pretty much how it goes when I don’t take my muscle relaxer before I go to bed. I didn’t think anything of it because it does happen and usually wears off after a few hours. By the time I got to work I was in so much pain I wanted to cry. I ended up calling my doctor and getting pain pills called in but I decided that I would rather have a headache all weekend then the amount of pain I am in right now. I have learned to handle headaches but I can’t deal with this pain especially since it is super hard to get pain pills out of my doctor. She treats me like I am a drug addict and it is getting on my last nerve but that is another post for another day. So I have the pain and when I was looking at the other side effects a lot of things made a whole bunch of sense to me. Here are the side effects that go along with the drug:
|
|
When I looked at this list I realized that the UTI I had was because of the drug and the fact that my glands always swell up and hurt me was because of it. I am amazed that this drug that is helping my MS is always making me sick. It makes no sense to me. I know I don’t want to stop taking the drug but I also know that I can’t keep dealing with all of the side effects. All the ones in pink are the ones that I have had while I have been taking this drug. After looking at the list and things that I have it is time to go back to the doctor and maybe go on a different medication.
The big thing I want to say today is don’t let doctors bully you into staying on something that makes you sicker than the MS makes you. You need to take your health into your own hands and do what makes you feel better!
New 30 Day Blog Journal
I am going to start a new 30 day blog journal. I am not going to post everyday just every few days. It will take me longer than 30 Days but I am okay with it!
Day 1 – A photo of yourself and a description of how your day was.
~~~~~~~~~~~~~~~~~~~
Day 1- A photo of myself and how my day went
My day went pretty well today. I just relaxed and watched movies. I also worked out!!! I got this MS work out DVD so I tried that today. It was really fun except for it was super easy. They have three different levels and I did the easiest one because I didn’t want to over due it. I am going to do it again tomorrow and try the one that is the middle level.
Parents
I apologize for not having my guest post for last week. I have been at my mother’s house. She had surgery on one of her legs and the recovery has been a bit more difficult than was anticipated. I have been working hard helping her out, and completing some projects for her. I was so tired when it the time came to write the guest post, that I could not even string a proper sentence together.
I have been thinking a lot about being a parent and parenting while I have been here. Being a parent is a never-ending job. With it comes much sorrow and joy. The catalyst for thinking about being a parent and parenting was something my brother said this week, as well as meeting my pregnant daughter-in-law for the first time. It got me thinking about how often – as adults – we do not allow our parents to be parents to us.
My brother – and his wife – has been struggling with his own mental health issues for the last few years. My parents found out about his mental health issues/mental illness around the same time I tried to take my own life. It was a shock for them to find out that both of their children have severe mental health issues. My brother and his wife have been in therapy – separately and together – for a few months longer than I have. For some reason, neither one of them seem to be progressing in getting mentally/emotionally healthy. In fact, it appears that my brother has been on a downward spiral and gotten worse during the time. My brother’s ability to earn as much money as he used to has drastically decreased, and he is currently struggling to pay for a license he needs to be able to continue to work in his chosen profession.
Rather than tell anyone what is going on, and letting us know how we can help him, my brother has chosen to be quiet about what is going on with him. Consequently, the only way my parents know how to help him is to offer him money. The other day, my brother made the comment that he wished that my parents “would just be parents” and not try and “fix things with money”. My reply was “How can they be parents if you do not give them the opportunity to be” My point in saying that was that since he does not let anyone know what is going on with him mentally/emotionally, the only thing my parents know to do is to help him financially. He is not giving them the opportunity to be the parents he wants – needs – and is expecting them to be.
How often do we do that? We want/need our parents to be there for us, but we with-hold things from them, making it impossible for them to be there in the way we need. We shut out the very people who love and support us unconditionally. No matter how old we get, our parents are our parents, and have a built in need to love and care for us. Our parents also have the benefit of having wisdom that comes with living life longer than we have. They occasionally can give us the exact advice we have been needing to hear.
My daughter-in-law is only 19 – pregnant – and married to my 20 year old son. They are both young, and in many ways still very immature. They are still in that stage of life where they know everything, and parental units know almost nothing. My son especially, wants nothing from me or his father right now, and goes to great lengths to hide things from us. My daughter-in-law seems to have a better grasp on reality and has started coming to me for advice, and some parenting – since her own mother lives far away. She has even asked me to be with her during her labor and delivery, since neither my son – her husband – or mother can be there during that time.
At this time in my life, when I am learning how to parent my daughter again, and getting used to the fact that I will be a grandmother in a few months, I am now having to learn how to parent a total stranger. It makes me think of all those years – when my own mother was not emotionally healthy enough to parent me – that I found women to fill the need I had for a mother. As a result, I have had some wonderful and strong women in my life. They helped me through rough patches, and showed me unconditional love. I believe that helped me learn how to accept my mother for who she is, when she became emotionally healthy enough to be a parent. Now it is my turn to be a strong parent and role model for someone else.
I guess the point in all my ranting is that we – even though we are adults – need parenting as much as our own children do. We need the comfort and love that it gives us. We also need the truth and honesty that parents display toward us. Some of us are blessed by having parents who are emotionally healthy enough to do this. Others are blessed by finding the right people to fill in for their own parents. Open yourself up, and let some parental love come in.
MS Tuesdays
I know I post about MS on Tuesdays but I have been having a rough time lately and couldn’t find the motivation to write about it this week. I am going to take a break and hopefully write about it next week. I did want to write about something else though. This weekend on Facebook I posted the following status: Wants to know. If she were to die tomorrow, what is the last thing that you would want to say to me? (answers below or messaged to me). The only response that I got was from a lady that I have gotten to know really well since I had my daughter. I wanted to post what she wrote to me and then write her a letter because I know she reads my blog!
Her Response:
So please tell me that you are not planning on dying tomorrow! What would I say about you? (After I kicked your butt for dying!) I would say that you are one of the most courageous people I have ever met in my life. Instead of wallowing in self-pity for the hard things in life that have come your way, you have chosen to take the bull by the horns and fight to make a difference. You are truly one of the most unselfish people I have ever met. You have the ability to look at all sides of a situation with wisdom and an open mind. You are a force to be reckoned with! You are a loving person who wants to make a difference in this world, especially for the injustice that is done by bullying and educating people about adoption and MS. You have been a blessing to your Grandma Tidwell and you have given her the opportunity to be the beautiful daughter that she could never give birth to. I know that…moms talk to each other about their kids, you know…and she is grateful for you. You have given another family the precious gift of your own daughter and have never looked back on that decision. You have fulfilled many purposes in this life and have many purposes yet to fill, and positive differences to make in the lives of many. You are a bright light in the eyes of many people….without even meaning to shine. You understand what it means to love unconditionally and judge not. You are beautiful inside and out and have left your footprints on my heart by teaching me things that I never would have learned, had I not rubbed shoulders with you. You love a good Dr. Pepper, the game of football, your cubs, and junk food. You are proud of your Chippewa heritage and love to travel. You have the gift of gab, the love of shopping, and the talent of writing. You honor your country. You drive a cool car! Your shoulders bear heavy burdens, but you hold them high with dignity and grace throughout your journey here. You are the woman I hope to become someday…and I love you. You are you…and that’s all you need to be.
Dear Jill,
I want to thank you for what you said. You will never know how your words have helped me get through the past days. I tend to pull away from people when I get depressed because I get mean but what you said made me see the good that others see in me. I had a great time at breakfast and we definitely need to do it more often. I am writing this here so that people can see it!!!! This isn’t long but I want to thank you and tell you I am glad you are in my life!!!!!
Love
Margaret