Archives for November 2010

Day 5

Today’s topic is a photo of me that was taken 2 years ago.  I believe that this one was taken then but I could be off by a year.

MS Tuesdays

This is something I posted on my private blog but thought that maybe people out there can relate to what I am saying.  This post really isn’t about MS but it is something that I am struggling with right now because of the MS and people not understanding my current mood.

I wish people could understand how it feels to one day be able to do something and then the next day not be able to do it.  People just don’t seem to understand the amount of frustration and anger that it causes to never know what the next day will bring.  It is so hard right now for me to except that I am sick and getting sicker.  I hate that I am never going to know from day to day what this disease will bring.  I know people think I am crazy, mean and or bitchy but if they want to know what it is like lets randomly make them not able to do things and then change it at random times.  I really wish everyone could experience it that way they would know what it feels like and how frustrating it is not knowing what the next day is going to bring.  It is so hard going to bed not knowing how you will feel when you wake up or what you will be able to do.

People in my life assume that because I am up and walking around that I am okay but what they can’t see is the pain I am in or the fact that my feet are numb.  I wish I had a disease that you could see so that people wouldn’t think I am lying to them about how I feel.  I don’t understand why it is so hard to understand that I am in pain and I hurt on a daily basis.  I also don’t get why people don’t seem to get the I am sick and not lazy.  If I could work two jobs and move out of my Grandparents house I would in a heart beat but it is all I can do to work the job that I have now.  I hate living there and I don’t think people understand that.  I moved out before because I couldn’t stand it there and I am back to that point again.  No one will ever understand just how much I hate being there but because of the huge amount of doctors bills I have and will always have because of the MS I have no option but to live there because I don’t make enough to pay doctor bills and rent.

Jacqui

Myspace Layouts, Myspace graphics

Get your own myspace graphics or myspace layouts at MyspaceBrand.com

It is my bloggy BFF’s birthday today!!!  She is also the designer of my blogs.  I have never met her in person but it seems like I have known her forever.  I can tell her anything and she just seems to get me and what I am saying.  I am hoping one day soon her and I will be able to met up and party in Vegas for our birthdays.  Everyone needs to go send her some birthday wishes.  Here are the links to her blogs:
http://bloggingjacqui.blogspot.com/
http://www.cookingforlittlefingers.blogspot.com/
http://www.wackyjacquisdesigns.blogspot.com/

Love ya girl!!!!!!

Thanksgiving Pictures

This pictures were taken yesterday and wow do I look fat!!!!

Day 4

Today I am supposed to post a picture of my best friend.  I have two so I am going to post pictures of both of them.  First there is Jacqui who designs my blog and is also someone I have never met in real life but I hope I will one day.

My other best friend is my boss and more like a sister than a best friend.  Her and I have been through a lot together and we get closer everyday.  Most days she knows me better than I know myself!

Those are my two best friends!

Copaxone

This week I am going to talk about Copaxone and my experiences with it.  Copaxone is given in shot form that you take every day.  It goes just under the skin.  It is composed a amino acids that may act as a decoy so that your body will attack the drug and not your nervous system.  This drug has been around since about 1996 and seen as a safe drug. Here are a list of possible side effects from the drug:

  • pain, redness, swelling, itching, or lump in the place where you injected glatiramer
  • weakness
  • flushing
  • depression
  • abnormal dreams
  • pain in the back, neck, or any other part of the body
  • severe headache
  • loss of appetite
  • diarrhea
  • nausea
  • vomiting
  • weight gain
  • swelling of the hands, feet, ankles, or lower legs
  • purple patches on skin
  • joint pain
  • confusion
  • nervousness
  • crossed eyes
  • difficulty speaking
  • shaking hands that you cannot control
  • sweating
  • ear pain
  • painful or changed menstrual periods
  • vaginal itching and discharge
  • urgent need to urinate or defecate
  • tightness in muscles
  • white patches in the mouth

I personally have never seen this many possible side effects.   I can tell you when I took it I remember the injection site being red and swollen and that is all the side effects I had.  I hated these shots for a number of reasons but the many one is that I hated to give myself a shot everyday.  I hate giving shots to myself.  I would sit there for hours trying to talk myself into doing it.  It would finally get to the point where someone else would have to do it for me.  This drug didn’t do anything for me at all.  I felt like I did when I wasn’t on anything.  I know for some people they love this drug but for me personally it did nothing.

That is all I really have to say about the drug.  Please don’t base your decisions on which treatment to use sully on my experiences with the drug.  Before I do any treatment I always do research on it and see what people who are on it say about it.  I hope everyone has a great Thanksgiving.  As always I am looking for ideas to write about so if you have something you would like to see please leave me a comment and I will write about it!
Sources
http://en.wikipedia.org/wiki/Glatiramer_acetate
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000225

Day 3

Day 3 is my idea of a perfect date.  I don’t really have an idea because I hate dating.  I also have no desire to date ever again.  I am okay being single at least for now.  I do have days that get lonely but for the most part I am much happier not having to worry about a guy and having to check in with someone.

Day 2

Day 2 is something that I have eaten today.  I am going to take pictures off of the internet because I didn’t take pictures.

As you can see I ate a lot of crap today.  I tend to snack all day so I eat a lot of different things!

MS Tuesdays-Tysabri & Me

This week for MS Tuesdays I am going to write about my latest infusion and the new side effects that I had with this one.  I have always gotten a headache and sometimes I would have a reaction that felt like I was burning up from the inside out.  Well this time I had a whole new set of side effects that I wasn’t prepared for.  I had in on a Thursday because I couldn’t take Friday off and now that I look back at it and this turned out to be a good thing.  Anyways, I  woke up Friday and i was a little stiff but that is pretty much how it goes when I don’t take my muscle relaxer before I go to bed.  I didn’t think anything of it because it does happen and usually wears off after a few hours.  By the time I got to work I was in so much pain I wanted to cry.  I ended up calling my doctor and getting pain pills called  in but I decided that I would rather have a headache all weekend then the amount of pain I am in right now.  I have learned to handle headaches but I can’t deal with this pain especially since it is super hard to get pain pills out of my doctor.  She treats me like I am a drug addict and it is getting on my last nerve but that is another post for another day.  So I have the pain and when I was looking at the other side effects a lot of things made a whole bunch of sense to me.  Here are the side effects that go along with the drug:

  • headache
  • urinary tract infection
  • lung infection
  • pain in your arms and legs
  • vaginitis
  • nose and throat infections
  • feeling tired
  • joint pain
  • depression
  • diarrhea
  • rash
  • stomach area pain

When I looked at this list I realized that the UTI I had was because of the drug and the fact that my glands always swell up and hurt me was because of it.  I am amazed that this drug that is helping my MS is always making me sick.  It makes no sense to me.  I know I don’t want to stop taking the drug but I also know that I can’t keep dealing with all of the side effects.  All the ones in pink are the ones that I have had while I have been taking this drug.  After looking at the list and things that I have it is time to go back to the doctor and maybe go on a different medication. 

The big thing I want to say today is don’t let doctors bully you into staying on something that makes you sicker than the MS makes you.  You need to take your health into your own hands and do what makes you feel better!

New 30 Day Blog Journal

I am going to start a new 30 day blog journal. I am not going to post everyday just every few days.  It will take me longer than 30 Days but I am okay with it!



Day 1 – A photo of yourself and a description of how your day was.

Day 2 – A photo of something you ate today.
Day 3 – Your idea of the perfect first date.
Day 4 – Your favorite photograph of your best friend.
Day 5 – A photo of yourself two years ago.
Day 6 – A photo of an animal you’d love to keep as a pet.
Day 7 – Your dream wedding.
Day 8 – A song to match your mood.
Day 9 – A photo of the item you last purchased.
Day 10 – A photo of your favorite place to eat.
Day 11 – What’s in your makeup bag.
Day 12 – A photograph of the town you live in
Day 13 – Your favorite musician and why?
Day 14 – A TV show you’re currently addicted to.
Day 15 – Something you don’t leave the house without.
Day 16 – Your celebrity crush.
Day 17 – A photo of you and your family.
Day 18 – Something you crave a lot.
Day 19 – Another picture of yourself.
Day 20 – The meaning behind your blog name.
Day 21 – A photo of something that makes you happy.
Day 22 – A letter to someone who has hurt you recently.
Day 23 – 15 facts about you.
Day 24 – A photo of something that means a lot to you.
Day 25 – What’s in your purse?
Day 26 – A photo of somewhere you’ve been to.
Day 27 – A picture of you last year and now and how you changed since then?
Day 28 – Your favorite movie.
Day 29 – Something you could never get tired of doing.
Day 30 – A photograph of yourself today + three good things that have happened in the past 30 days.
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Day 1- A photo of myself and how my day went

My day went pretty well today.  I just relaxed and watched movies.  I also worked out!!!  I got this MS work out DVD so I tried that today.  It was really fun except for it was super easy.  They have three different levels and I did the easiest one because I didn’t want to over due it.  I am going to do it again tomorrow and try the one that is the middle level.