1. The illness I live with is: Multiple Sclerosis
2. I was diagnosed with it in the year: 2000 or 2001 I believe
3. But I had symptoms since: I was in 5th grade
4. The biggest adjustment I’ve had to make is: Realizing that I have to slow down and pace myself.
5. Most people assume: That nothing is wrong with me and that I am just lazy
6. The hardest part about mornings are: Getting up if I have been up most of the night or if I am in pain
7. My favorite medical TV show is: I don’t really watch any of these since they took Discovery Health off the air in my area.
8. A gadget I couldn’t live without is: My computer & my cell phone calander
9. The hardest part about nights are: Falling asleep and staying asleep.
10. Each day I take __ pills & vitamins. (No comments, please) 7 everyday and then maybe 3 or 4 more depending on pain that I am having.
11. Regarding alternative treatments I: Really want to try acupuncture but I don’t have the money to try it right now.
12. If I had to choose between an invisible illness or visible I would choose: Visible
13. Regarding working and career: I currently work as a receptionist and I also design blogs but I had to quit my job in the medical field because of it.
14. People would be surprised to know:That my hands are numb and I had to reteach myself to type.
15. The hardest thing to accept about my new reality has been:Knowing that I can’t do the same things other people my age do and also knowing the people get scared off when they find out I have MS
16. Something I never thought I could do with my illness that I did was:I can’t really think of anything.
17. The commercials about my illness:I haven’t really seen any commercials about MS
18. Something I really miss doing since I was diagnosed is:Since I have had it so long I don’t really miss anything because I have been dealing with this for years now.
19. It was really hard to have to give up: It has been hard for me to stop eating gluten because I love bread. I didn’t find out that I couldn’t eat gluten till about 5 years ago but when I don’t eat it my MS does so much better.
20. A new hobby I have taken up since my diagnosis is: Since I have had MS for so long I haven’t really picked up anything new other than design blogs and blogging.
21. If I could have one day of feeling normal again I would: There isn’t anything I would do differently than what I do now.
22. My illness has taught me: Is to slow down and enjoy the little moments
23. Want to know a secret? One thing people say that gets under my skin is: “I am sorry” or “That has to be hard”
24. But I love it when people:Don’t judge and take the time to listen and learn about MS.
25. My favorite motto, scripture, quote that gets me through tough times is:“You never know how strong you are until being strong is the only choice you have”
26. When someone is diagnosed I’d like to tell them:Do your research because knowledge is power!
27. Something that has surprised me about living with an illness is:How shallow and rude people are and can be.
28. The nicest thing someone did for me when I wasn’t feeling well was:Just be there
29. I’m involved with Invisible Illness Week because:I want everyone to learn about invisible illnesses
30. The fact that you read this list makes me feel:Good because it means that you are willing to learn and you are judging.
30 Things About My Invisible Illness
I was going through the drafts of posts that I have and I found this questionaire. I am pretty sure I got this last September during Invisible Illness week and for some reason I never filled it out and posted it. I figured I would fill it out now and compare it to the one I did a few years ago. If you want to see the other one click here and it will take you to it.