I had another rough week so I am going to post about some things that are going on with me right now. I had my last infusion a few weeks ago and it usually makes me feel better but the last few months it hasn’t really been working like it used to. That isn’t saying it isn’t doing it job it just isn’t make me feel better. After my last MRI I was told I am still stable and that is a huge thing for me. Ever since I have been diagnosed I have never been stable. I am happy for that I just wish that I also felt better than what I do. It is great to know the disease isn’t getting worse but I am feeling worse than I have ever felt. I guess this is just my new normal and that is really hard for me to except right now. I wish I felt like I was stable but one day this will be normal to me as well. I just want to be a 25 year old that can go out and party on the weekends and not worry about over doing it or not being able to work on Monday because I did to much over the weekend. God knows why he gave this to me and not someone else. I just trust that one day I will know why that is.
This is a short post but if you want to know anything about MS please leave a comment and I will for sure right a post about it!
5 Comments on MS Tuesdays
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Oh honey. I'm so sorry. I'm sorry you have to go through all this. I know what you mean about the "disease" being stable, but "we" feel like sh!t. Hang in there!
Sorry to hear about your load. I am in your SITS group. Though I would stop by and say hi!!
Leslie
Hello Margaret,
I'm really touched by reading through your story. So much for a young person to have to go through! Bravo to you for having the courage to share your experience, thought painful, with others. I can imagine that it is somewhat cathartic to "blog it out". I'm so glad to have met you and I'm sending you thoughts of strength – be well, my dear.
Coming by from SITS Hare group. It's takes courage to share your story. I wish you all the best.
I don't know much about MS but I do know a thing or two about illness and not feeling well. It sucks when it seems your "new normal" isn't as sunshiney as you would like.
I'm one of your Hare groupies, dropping in to say hello.