30 THINGS ABOUT MY INVISIBLE ILLNESS YOU MAY NOT KNOW
1. The illness I live with is: Multiple Sclerosis
2. I was diagnosed with it in the year: 2000
3. But I had symptoms since: As long as I can remember
4. The biggest adjustment I’ve had to make is: Not knowing what each day will bring
5. Most people assume:That I am just lazy because I am too tired to go out and do anything after work or on the weekends.
6. The hardest part about mornings are:Having to get up when I just want to sleep.
7. My favorite medical TV show is:I love the shows on TLC and Discovery Health.
8. A gadget I couldn’t live without is:My computer
9. The hardest part about nights are:Not being able to sleep
10. Each day I take _10_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I:am willing to try anything that could work or take away some of the pain.
12. If I had to choose between an invisible illness or visible I would choose:Visisble
13. Regarding working and career:It is hard to work but I do my best. I don’t let many people know I am even sick.
14. People would be surprised to know:How much pain I am in and how tired I am.
15. The hardest thing to accept about my new reality has been: Being tired and know this will never go away.
16. Something I never thought I could do with my illness that I did was:Be stable and find a medication that works for me.
17. The commercials about my illness:There aren’t many and the ones I see bug me!
18. Something I really miss doing since I was diagnosed is:I don’t know. I don’t remember a time when I wasn’t sick.
19. It was really hard to have to give up:Gluten because it is in all my favorite foods.
20. A new hobby I have taken up since my diagnosis is:Blogging
21. If I could have one day of feeling normal again I would:Live it up! I would do as much as I could do in one day.
22. My illness has taught me:Patience
23. Want to know a secret? One thing people say that gets under my skin is: But you don’t look sick or tell me I am lazy
24. But I love it when people:Want to learn about MS
25. My favorite motto, scripture, quote that gets me through tough times is:You don’t know how strong you are until being strong is the only option you have.
26. When someone is diagnosed I’d like to tell them:It will get better! There are people out there to help you!
27. Something that has surprised me about living with an illness is:That is it doable! Just because I am sick doesn’t mean I am going to die tomorrow.
28. The nicest thing someone did for me when I wasn’t feeling well was:People haven brought dinner to my family.
29. I’m involved with Invisible Illness Week because:People need to learn that we are sick even though you can’t see it!
30. The fact that you read this list makes me feel:Good because it means more people want to learn about MS
2. I was diagnosed with it in the year: 2000
3. But I had symptoms since: As long as I can remember
4. The biggest adjustment I’ve had to make is: Not knowing what each day will bring
5. Most people assume:That I am just lazy because I am too tired to go out and do anything after work or on the weekends.
6. The hardest part about mornings are:Having to get up when I just want to sleep.
7. My favorite medical TV show is:I love the shows on TLC and Discovery Health.
8. A gadget I couldn’t live without is:My computer
9. The hardest part about nights are:Not being able to sleep
10. Each day I take _10_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I:am willing to try anything that could work or take away some of the pain.
12. If I had to choose between an invisible illness or visible I would choose:Visisble
13. Regarding working and career:It is hard to work but I do my best. I don’t let many people know I am even sick.
14. People would be surprised to know:How much pain I am in and how tired I am.
15. The hardest thing to accept about my new reality has been: Being tired and know this will never go away.
16. Something I never thought I could do with my illness that I did was:Be stable and find a medication that works for me.
17. The commercials about my illness:There aren’t many and the ones I see bug me!
18. Something I really miss doing since I was diagnosed is:I don’t know. I don’t remember a time when I wasn’t sick.
19. It was really hard to have to give up:Gluten because it is in all my favorite foods.
20. A new hobby I have taken up since my diagnosis is:Blogging
21. If I could have one day of feeling normal again I would:Live it up! I would do as much as I could do in one day.
22. My illness has taught me:Patience
23. Want to know a secret? One thing people say that gets under my skin is: But you don’t look sick or tell me I am lazy
24. But I love it when people:Want to learn about MS
25. My favorite motto, scripture, quote that gets me through tough times is:You don’t know how strong you are until being strong is the only option you have.
26. When someone is diagnosed I’d like to tell them:It will get better! There are people out there to help you!
27. Something that has surprised me about living with an illness is:That is it doable! Just because I am sick doesn’t mean I am going to die tomorrow.
28. The nicest thing someone did for me when I wasn’t feeling well was:People haven brought dinner to my family.
29. I’m involved with Invisible Illness Week because:People need to learn that we are sick even though you can’t see it!
30. The fact that you read this list makes me feel:Good because it means more people want to learn about MS
5 Comments on 30 Things
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I love Discovery Health (esp. Mystery Diagnosis)
Your everyday is a struggle and I am awed at your strength during this struggle.
Oohh have you cut out the use of aspartame in other words nutra sweet, sweet and low and the like.. Did you know the toxicitiy of those in the body can cause many MS symptoms? Yeah a visible illness is easier to have to explain I totally get that..
Thank you for sharing your thoughts and feelings. They inspired me to be more thoughtful and understanding. Will be stopping by often.
I LOVED this post, Margaret! Thank you for sharing! I may *borrow* the questions for a post of my own next week. If that's okay, of course!
Thank you for sharing your list!! Blessings to you today and gentle hugs. Tammy