This week for MS Tuesdays I am going to write about my latest infusion and the new side effects that I had with this one.  I have always gotten a headache and sometimes I would have a reaction that felt like I was burning up from the inside out.  Well this time I had a whole new set of side effects that I wasn’t prepared for.  I had in on a Thursday because I couldn’t take Friday off and now that I look back at it and this turned out to be a good thing.  Anyways, I  woke up Friday and i was a little stiff but that is pretty much how it goes when I don’t take my muscle relaxer before I go to bed.  I didn’t think anything of it because it does happen and usually wears off after a few hours.  By the time I got to work I was in so much pain I wanted to cry.  I ended up calling my doctor and getting pain pills called  in but I decided that I would rather have a headache all weekend then the amount of pain I am in right now.  I have learned to handle headaches but I can’t deal with this pain especially since it is super hard to get pain pills out of my doctor.  She treats me like I am a drug addict and it is getting on my last nerve but that is another post for another day.  So I have the pain and when I was looking at the other side effects a lot of things made a whole bunch of sense to me.  Here are the side effects that go along with the drug:

When I looked at this list I realized that the UTI I had was because of the drug and the fact that my glands always swell up and hurt me was because of it.  I am amazed that this drug that is helping my MS is always making me sick.  It makes no sense to me.  I know I don’t want to stop taking the drug but I also know that I can’t keep dealing with all of the side effects.  All the ones in pink are the ones that I have had while I have been taking this drug.  After looking at the list and things that I have it is time to go back to the doctor and maybe go on a different medication. 

The big thing I want to say today is don’t let doctors bully you into staying on something that makes you sicker than the MS makes you.  You need to take your health into your own hands and do what makes you feel better!