WELL TODAY IS MY FRIDAY!!!! THANK GOD FOR THAT! I AM SO READY FOR THIS WEEK TO BE OVER! IT HAS BEEN A REALLY LONG WEEK AND TOMORROW IS MY INFUSION SO I AM GLAD FOR THAT AS WELL. IT IS ABOUT TIME FOR MY INFUSION. I ALWAYS HATE THE WEEK LEADING UP TO IT. IT IS A HARD WEEK TO GET THROUGH. OH WELL IT IS ALMOST TIME FOR INFUSION AND LIFE WILL BE BETTER NEXT WEEK. NO MORE BEING TIRED AND IN PAIN. I HAVE BEEN WONDERING WHY GOD MAKES SOME PEOPLE DEAL WITH SO MUCH IN LIFE? I HAVE BEEN WONDERING WHY THINGS IN MY LIFE HAS ALWAYS BEEN A STRUGGLE I AM GETTING TIRED OF FIGHTING FOR THING. I JUST ONCE WANT THINGS TO BE NOT SO HARD. I KNOW THIS IS JUST A WISH BUT MAYBE ONE DAY IT WILL COME TRUE FOR ME. I GUESS LIFE BEING HARD HAS MADE WHO I AM TODAY. I HAVE STARTED TO SEE THAT I CAN’T TAKE LIFE FOR GRANTED CAUSE YOU NEVER KNOW WHEN YOU WON’T BE AROUND ANYMORE.
MY FAMILY REUNION IS COMING UP AND IT SHOULD BE INTERESTING TO SAY THE LEAST. IT WILL BE THE FIRST REUNION SINCE RUSSELL HAS PASSED AWAY. I AM SURE THAT THEY WILL ALL SIT AROUND AND TELL STORIES ABOUT HIM. I KNOW IT WILL BE WEIRD NOT TO HAVE HIM THERE WITH THE FAMILY. YOU CAN’T HELP BUT WONDER WHO WILL BE THE NEXT TO GO IN THE FAMILY. I HAVE MY THOUGHTS BUT YOU NEVER KNOW WHO WILL BE THE NEXT ONE TO GO.
THRILLING THURSDAY
WACKY WENSDAY
WELL IT IS WENSDAY AND THAT MEANS THAT I AM ONE DAY CLOSER TO MY WEEKEND! I AM OFF ON FRIDAY OR AT LEAST THE MORNING FOR MY INFUSION SO! I AM SO READY FOR IT THIS MONTH TOO. I AM TIRED OF BEING TIRED ALL THE TIME. IT IS GETTING OLD REALLY QUICK! I HOPE THAT I NEVER HAVE TO STOP TAKING THE TYSABRI CAUSE IF SO LIFE WILL TOTALLY SUCK ASS!!! I NEVER WANT TO GO BACK TO HOW IT WAS BEFORE THE TYSABRI. I DIDN’T HAVE A LIFE BEFORE I WAS ON IT AND IT SUCKED. IT WOULD BE EVEN WORSE NOW BECAUSE I KNOW WHAT IT IS LIKE TO BE A NORMAL PERSON THAT ISN’T TIRED ALL THE TIME. SO I AM GOING TO DO EVERYTHING IN MY POWER TO STAY ON THE MEDICATION.
WORK IS STILL SLOW THAT IS ALWAYS SCARY! I ALSO HATE BEING SLOW AT WORK CAUSE IT MEANS THAT I JUST SIT HERE MORE THAN I WORK AND THAT MAKES FOR EXTRA SLOW DAYS! I HATE SLOW DAYS AT WORK. IT IS SO BAD THAT THE PHONES ARE HARDLY RINGING ANYMORE AND SINCE THAT IS MY MAIN JOB IT GETS BORING REALLY REALLY QUICK! OH WELL AT LEAST I HAVE JOB AND I CAN STILL PAY MY BILLS! SO I CAN’T COMPLAIN ABOUT THINGS RIGHT NOW.
I AM GOING TO TEACH SYLVIA TO FIGHT! LOL SHE NEEDS TO LEARN HOW TO FIGHT SO THAT SHE CAN PROTECT THE YARD AND VINNIE WON’T HAVE TO DO IT AS MUCH. HELL SYLVIA IS THE ONLY CAT THAT WE HAVE THAT ISN’T CHALLENGED IN ANYWAY. SO IT IS HER TURN TO PROTECT THE YARD. SO IF ANYONE HAS ANY IDEAS ON HOW TO TRAIN AND CAT TO FIGHT LET ME KNOW. I DOUBT SYLVIA WILL EVER FIGHT THOUGH BECAUSE SHE IS TOO MUCH OF A PRINCESS! SHE MIGHT MESS UP HER FUR OR HER TAIL MIGHT GET HURT. FOR THOSE OF YOU WHO HAVE MET SYLVIA YOU KNOW THAT YOU DON’T EVER TOUCH HER TAIL!
JOSH DROVE THROUGH HERE LAST NIGHT BUT DIDN’T HAVE THE TIME TO STOP. SO HE WAS SO CLOSE AND WE STILL DIDN’T GET TO SEE EACH OTHER BUT HE WILL BE BACK NEXT WEEKEND SO WE WILL GET TO SEE EACH OTHER THEN! THIS IS HOW HIS JOB IS THOUGH AND IT IS SOMETHING THAT I HAVE GOTTEN USED TOO. IT IS STILL SAD BUT IT IS SOMETHING THAT I HAVE EXCEPTED AND DON’T COMPLAIN TO MUCH ABOUT ANYMORE. IN THE BEGINING IT SUCKED AND I BITCHED ABOUT IT BUT NOW I HAVE LEARNED THAT ME COMPLAINING JUST UPSETS AND HURTS JOSH. HE ISN’T DOING IT BECAUSE HE DIDN’T WANT TO STOP HE DID IT BECAUSE HE HAS TO GET THE LOAD THERE ON TIME. WE BOTH KNOW THAT WE CAN USE THE MONEY FOR BILLS SO IT HAD TO BE DONE. I CAN WAIT FOR ANOTHERWEEK TO SEE HIM. HELL I HAVE WAITED FOR MONTHS TO SEE HIM SO A FEW MORE DAYS WON’T HURT ME!!!!
I HAVE DECIDED THAT I AM TOO NEGATIVE AT TIMES SO I AM GOING TO TRY AND BE MORE POSITIVE!!! IT IS GOING TO BE A UPHILL BATTLE AT TIMES BUT I AM GOING TO TRY. I AM ALSO GOING TO TRY AND LEARN “PEOPLE SKILLS”. PEOPLE THAT KNOW ME KNOW THAT I TEND TO LACK IN THAT AREA. SO THAT IS WHAT I AM GOING TO WORK ON FOR THE REST OF YEAR!
MONDAY MADNESS
I AM JUST BARELY POSTING TODAY WHICH MEANS THAT TODAY HAS BEEN SUPER BUSY! I MEAN I AM ALWAYS POSTING AT LEAST BEFORE I GO TO LUNCH AND I AM JUST BARELY GETTING AROUND TO IT. SO LETS SEE WHAT HAVE I DONE TODAY: MAIL X2, BID LIST, ENTER IN PO’S X2, FOLDERS X2, INVENTORY, HAROLD’S FILING, MAILED INVOICES, GOT MAIL READY FOR TOMORROW, ROGERS O&M’S. THAT IS ALL I CAN THINK OF GUESS IT IS A LOT JUST DOESN’T SEEM LIKE THAT MUCH TO ME. GUESS I AM JUST MOVING SLOW TODAY. I CAN’T SEEM TO STAY MOTIVATED TO WORK TODAY. I AM SURE MOST OF IT IS BECAUSE THE TYSABRI IS ALL OUT OF MY SYSTEM. I CAN’T WAIT FOR FRIDAY SO THAT I CAN HAVE MY NEXT INFUSION AND BE GOOD TO GO FOR ANOTHER MONTH.
ELINORE HAS BEEN THROWING UP SO MUCH THIS WEEKEND. I AM NOT SURE WHAT IS GOING ON WITH HER ANYMORE. I KNOW THAT WHEN WE SCARE HER SHE THROWS UP BUT OTHER THAN THAT I AM NOT SURE WHY SHE IS DOING IT NOW. IT IS SURE GETTING OLD THOUGH. ALL I DID LAST NIGHT WAS CLEAN UP THROW UP FROM HER. SYLVIA IS STILL GROWING I SWEAR SHE GETS BIGGER EVERYDAY. I KNOW SHE CAN’T STILL BE GROWING BUT SHE SEEMS TO GET BIGGER AND MEANER ON A REGULAR BASIS. SHE IS THE PRETTIEST CAT I HAVE EVER HAD BUT SHE IS ALSO THE MEANEST ONE I HAVE EVER HAD. OH WELL CAN’T SEND HER BACK NOW. NOW I JUST HAVE TO DEAL WITH HER AND THE CHAOS THAT FOLLOWS HER.
WEEKEND FUN
THIS WEEKEND WAS LAID BACK FOR ME BECAUSE I WAS IN TONS OF PAIN. I AM NOT SURE WHY I HURT BUT IT SEEMED LIKE IT WAS ALL I COULD DO TO WALK AROUND. I MEAN YES I DID GO SHOPPING ON SATURDAY LIKE I ALWAYS DO BUT IT WASN’T FUN FOR ME AT ALL. IT IS EVEN WORSE BECAUSE I DON’T HAVE ANYTHING TO TAKE FOR THE PAIN. OH WELL GUESS IN TIME IT WILL BE OK.
FRIDAY IS MY NEXT INFUSION. I AM SO NOT LOOKING FORWARD TO HAVING THIS ONE. THE LAST ONE SUCKED AND I AM SURE THIS ONE WILL SUCK AS WELL. I AM MAKING GRANDMA TAKE ME TO THIS ONE SO THAT I CAN TAKE THE MEDICATIONS THAT I NEED TO AND I WON’T HAVE TO WORRY ABOUT DRIVING AFTER IT.
NOT MUCH TO SAY THIS TIME. I WILL TYPE MORE TOMORROW AT WORK! EVEN THOUGH I SHOULD WORK WHEN I AM AT WORK. I WOULD RATHER TYPE MY BLOG AND PLAY ON FACEBOOK!
HAVE A GREAT NIGHT!
VERY SCARY FOR ME!!!!!
Update on Tysabri and PML
According to Biogen Idec, a tenth confirmed case of progressive multifocal leukoencephalopathy (PML, a viral infection of the brain that usually leads to death or severe disability) has occurred among people who have used Tysabri® (natalizumab, Biogen Idec and Elan Pharmaceuticals) after it became available for prescription in July 2006. The case, reported by the company on June 26, 2009, occurred in a person in Europe who had been taking Tysabri for 30 months. The reported duration of use among these ten people has ranged from about 12 to 35 months.
As of the end of March 2009, 40,000 people worldwide were being prescribed Tysabri. Although the absolute risk for PML in patients treated with Tysabri cannot be precisely determined, the frequency to date remains less than the one-in-one thousand risk that was estimated at the time of Tysabri’s re-approval in 2006.
It appears that when PML is detected and treated early, it generally improves outcomes. It is important that individuals taking this drug and their doctors be vigilant in monitoring for any occurrence of new, unusual symptoms that might indicate PML. Typical symptoms associated with PML progress over days to weeks, and can include: • clumsiness and progressive weakness on one side of the body, • disturbances of vision, and • changes in thinking, memory, and orientation leading to confusion and personality changes.
If individuals taking Tysabri experience new, unusual symptoms, they should contact their prescribing physician immediately. Physicians who need guidelines on the protocol to follow when they have a patient on Tysabri who experiences unusual symptoms should contact Biogen Idec.
There is no specific therapy to treat PML, but the best hope is to reconstitute a person’s immune responses. Based on small-scale studies supported by Biogen Idec, plasma exchange, a blood-cleansing treatment, has been used to clear the bloodstream of Tysabri. There is insufficient evidence to determine whether plasma exchange can reduce PML symptoms.
For a company-released update on Tysabri use and postmarketing cases of PML, go to its Website.
Tysabri is a registered trademark of Biogen Idec and Elan.
DOCTORS APPOINTMENT
YESTERDAY I HAD A DOCTORS APPOINTMENT WITH MY MS DOCTOR. IT WENT REALLY WELL SHE WAS HAPPY TO KNOW THAT I WAS ON THE TYSABRI AGAIN. SHE ALSO INCREASE THE PILL THAT I TAKE AT NIGHT FOR MY MIGRAINES AND THAT HELPS ME SLEEP. SO NOW I AM TAKING 100 MG OF IT. SHE AND I BOTH KNOW THAT I HAVE A HIGH TOLERANCE FOR PILLS. SO I TOOK 100 LAST NIGHT AND IT REALLY DIDN’T HELP ME SLEEP SO I WILL SEE WHAT HAPPENS WITH IT. MY NEXT INFUSION IS ON FRIDAY SO WE WILL SEE HOW THAT GOES BUT I AM SURE I WILL BE JUST FINE. I AM NOT WORRIED ABOUT IT AT ALL. SO ALL IN ALL THINGS ARE GOOD WITH ME AND I CAN FINALLY START LIVING AGAIN NOW THAT I HAVE FOUND A TREATMENT THAT WILL WORK.
JOSH
WELL JOSH WANTS TO SEE IF THIS MARRIAGE CAN WORK NOW. HE KEEPS ME SO CONFUSED. I REALLY WOULD LIKE IT TO WORK BUT I DON’T KNOW IF IT CAN. I AM STRUGGLING WITH THE WHOLE CAN I TRUST HIM AGAIN. I THINK I CAN BUT HE CAN’T KNOW WHAT I KNOW. I HAVE TOO KEEP MY MOUTH SHUT AND SEE IF I CAN’T GET THINGS OUT OF HIM WITH OUT LETTING HIM KNOW I KNOW. I KNOW I LOVE HIM BUT I DON’T KNOW IF HE FEELS THE SAME THE WAY. IT WILL TAKE TIME AND ENERGY TO FIGURE IT ALL OUT. I HAVE LOTS OF TIME THAT IS FOR SURE. I AM NOT SURE WHAT WILL HAPPEN BUT I KNOW IN TIME THINGS WILL WORK OUT HOW THEY ARE SUPPOSED TO WORK OUT. EVEN IF EVERYONE DOESN’T AGREE WITH ME. I AM SO USED TO PEOPLE NOT AGREEING WITH ME THAT I ALWAYS DO WHAT I WANT TO DO AND NOT WORRY ABOUT OTHER PEOPLE.
I AM FEELING OK TODAY. I AM DEFINITELY BETTER THAN I WAS THE FIRST TIME. I AM SO GLAD THAT THE REACTION I HAD WASN’T AS BAD AS IT WAS THE FIRST TIME. I AM HOPING THAT THE DOCTOR WILL ALLOW ME TO KEEP DOING IT. I KNOW IT WORKS AND FOR THE FIRST TIME IN A LONG TIME I AM NOT TIRED AND WARN OUT. I KNOW THE MEDICATION IS WORKING AND I ALSO KNOW THAT I NEED TO FIGURE OUT HOW TO PAY FOR IT.
THE GIRLS ARE BIGGER MONSTERS THAN THEY EVER HAVE BEEN BEFORE. THEY ARE BOTH GETTING SO ACTIVE AND PLAYING SO MUCH. THEY ARE LOVING THE WARMER WEATHER THAT IS FOR SURE. I HAVE NEVER SEEN THEM SO HAPPY AND PLAYFUL. THEY ARE ALWAYS RUNNING AND JUMPING AND SYLVIA HAS A NEW PLACE TO SLEEP.
